Argh why is nothing ever simple.... P... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Argh why is nothing ever simple.... Pregnancy number 9....

kateb81 profile image
7 Replies

Hi Everyone... This isn't particularly APS related but needed a vent lol.... Sooo, as some of you know we have had a dodgy history with being pregnant and only earlier this year lost a baby at 14 weeks (our 7th loss) thanks to APS.... Well i found out I was pregnant again at the start of this month but it hasn't been an easy few weeks... I started the new medical plan as discussed at St Marys as soon as I got my +ve result (Clexane, Asprin and Steriods) and was booked in for a 6 week scan to make sure i wasn't ectopic (as apparently i'm higher risk now due to number of pregnancies)... So on the 13th of Sept I went for my 6 week scan not overly confident as i'd had some spotting and low and behold i was only showing as being about 5 weeks preg (only yolk sac visable) so was told to go back 10 days later.... Yesterday I went for my rescan. This showed a 6 week 2 day pregnancy with a heartbeat seen.... Now to my maths and knowing when the said event happened I am a week out.... I should be 7+ weeks now but am not.... My hubby (aka mr positive) is doing and saying all the right things and trying to keep my spirits up but i'm really not very optimistic that this pregnancy will continue.... I have now been discharged from the early pregnancy assessment clinic as they are happy there is a viable pregnancy which means i now have to wait 3 weeks till i go to my fetal maternal medicine appointment to see if its grown or is still behind for dates (unless its ends before then)..... I'm trying to stay very matter of fact about it and am trying not to get attached after the number we have lost but i just long so for this 2nd miracle and would really like to put an end to the pregnancy chapter of my life and get on with living.....

If anyone has any similar experiences I would love to hear about them.... And would be greatful for some positive vibes being sent my way xxxxx

Hugs Kate xxxx

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7 Replies
Suzypawz profile image
Suzypawz

I am sending you lots of positive vibes your way hun, you have been through enough & I really do hope this one will be a very happy ending for you both.

You have what sounds like a very good hubby that is just trying to keep you possitive too which is great to have :)

I havn't got similar experiences but just want to send you a virtual gentle hug through the lap top!

keep well, keep us updated & all the best hopes & wishes for the next few months xx

MaryF profile image
MaryFAdministrator

Hi there, I am also sending you the very best of wishes, lots of ladies on here have had similar problems, I was not one, having had mine sorted quite early on, but my sister lost 7! So understand the stress and misery involved.

I am pleased to hear that you have detailed care, and do please keep in touch for support and updates.

I am sure lots will come on here very soon, who have had similar experiences to what you are currently encountering.

Love Mary F x

Kay722 profile image
Kay722

Hi Kate, firstly congratulations (positive vibe) secondly I feel your pain and apprehension!!! I'm in a similar position to yourself although I haven't been diagnosed as of yet, am waiting to have the blood tests, but am pretty sure I have Hughes syndrome through the research I have done myself and it being mentioned in passing by 2 medics!!! I have just suffered my 5th miscarriage (missed miscarriage last week) I was 8+4 wks but had seen a viable pregnancy and heartbeat at my 6wk scan however when I went back last week it revealed the baby had died at 7wks!!!! This has left me devastated, however my situation is slightly different in that I do have 5 children aged from 18yrs to 15mths!!! I experienced 3 mc before having my son over 18yrs ago then gave birth to 4 children had a mc before baby No 4 then no problems with pheobie (my youngest) then said mc last week!!!! I have many symptoms of Hughes (but not all) and can't believe I have never really been investigated properly for Hughes just the words "sticky blood" being mentioned in the past!!! So I'm making it my mission to get tested and am off to my Drs tomorrow to be put on aspirin (as recommended my dr who cared for me last week at the hospital)!!! I know with each mc the pain gets harder to deal with!!! I don't think it's right the EPAU clinic have discharged you surely they should be offering you weekly scans I know my EPAU have said I can go as often as I like when I next get pregnant!!!! I think it's possible for a woman to know or have an "inkling" something isn't right with the pregnancy!!! I had this with the pregnancy I've just lost I suddenly just stopped feeling pregnant sickness went (didn't really have much anyway) yet am usually as sick as a dog and my boobs just felt normal so I did have a feeling all wasn't right so asked to be scanned which revealed I was right to trust my instincts....... Having said that miracles do happen I have 5 of them!!!!! I wish you every success for your pregnancy now and for any you have in the future!!!

All the very best and will keep my fingers crossed for you.... Regards Kay x

Rhian21 profile image
Rhian21

Rooting for you...brought back memories reading your blog..fingers crossed and hope meds get you through...good luck from the bottom of my heart x

Kimmichelle86 profile image
Kimmichelle86

Hi,

I am keeping my fingers and toes crossed for you!!

I have had 4 miscarriages now and no successful pregnancys, keep us updated and try to.stay positive (i know easier said than done) good luck

kim xx

kateb81 profile image
kateb81

Well things just get better, not! I think I've started miscarrying today.... Cant get in for scan till Thursday to confirm so lovely wait on my hands (although if i am miscarrying I'd like to think the worst will be over by thursday).. Will let you know what the scan says...... Here's hoping for a miracle xxx

kateb81 profile image
kateb81

Well I went for another scan today..... Good news, I haven't lost the baby in fact it has caught up a bit. Now showing 8wks 2days so finger crossed we carry on going xxx back to see consultant on Tuesday xx

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