Hi. My name is Yvonne Wren and I've recently been employed in the post of admin support worker for the Hughes Syndrome Foundation.
I'm trying to compile a list of specialists from all over the UK to put into a directory on the new Hughes Syndrome Foundation website that will be launched before the end of the year.
We have a tentative list at the moment, but have not yet sought permission from the relevant specialists to release their names.
I would be grateful if anyone could let me know of a specialist related to Hughes Syndrome who they may have seen or know of and who we could approach to seek permission to add them to the directory. Please could you let us know which department they belong to eg. haematology, rheumatology, neurology, cardiology, obstetrics or anything else.
Thank you and i look forward to hearing from you..