Hi all, I have APS, and severe lung disease, however, twice now, both times after taking steroids for my breathing, I am suffering terrible pain in my knees, pain score of 9 out 10 ....... My left leg is the worst, also being the leg I had a DVT, it is also really swollen with fluid. I don't think I have a DVT as INR has been kept at around 4' although dipped to 3.3 Friday. If I go below 3 I inject with fragmin.
I have also been having a few problems with my speech, saying totally incorrect words, ie giraffe for grapes, looking for my Hoover in ther fridge!! Funny I know, anyhow my haematologist said she will check for lupus. In the meantime can anyone tell me why my joints should hurst soooo much? Do you suffer too?
Thanks for any feed back