Hi all - since before the last documented stroke last oct I have continued eye pain that is unbearable on some days,even after commencing warfarin. My eyes continue to blur badly, and luckily since starting aspirin alongside the warfarin two weeks ago the black cloud that came over my left eye has stopped but the last two weeks the left side numbness down my body has been more frequent. I struggled to walk a week ago and everything was like id been injected with anaesthetic. I have pains in my knees and wrists that seem to get worse when this left sided episode happens. my neurologist has put the events down to migraine and i accept it, but surely nobody can have continuous migraine for 13 months?? My muscle spasms have been less painful since starting on pregabilin, however i still feel the sensation which is really weird.
Since Friday the eye pain has become unbearable and the pain has now radiated down to my cheek and im unable to move my cheek/jaw, and my gums are buzzing and tingling. The pain is awful.
Ive tried taking syndol which usually helps,and it has done nothing, ive been on paracetamol and codeine and it has only just made it bearable. Im taking two propranolol a day to stop migraines and its made no difference.
I feel like im drugged up to the eyeballs and in so much pain i cant tell you. I really thought warfarin would help, and it has to some degree but the days of pain seem to be getting more frequent, the episodes are just like strokes without the loss of vision. Nothing still shows up in blood tests and a ct scan showed 'no acute change'. My neuro physiotherapist and neuro opthalmologist says its neurological nerve damage - is this the case for anyone else, and how can this still be doing the damage even on warfarin -- im no doctor and i dont understand wwhats happening and quite scared - i hope your all having good days! xx