i have just joined tonight and wanted to introduce myself. im linda and think there is a very good possibility i might have hughes syndrome. i am waiting on the results of my blood tests which were taken by my gp on 14th december but have been told it could be another week or so before i get any results and even when the results do come back my dr may not act upon them as she has never heard of hughes syndrome or even the two blood tests (which i requested from gp - read on the site which tests to get). not sure where to go from here. due to my symptoms i am being tested for alzheimers, awaiting spect scan, ophthalmologists, speech and language therapist, neuropsychologist, psychiatrist and neurologist and am thoroughly fed up with it all!! reading the symptoms of hughes syndrome i have or have had 12 of the main symptoms in the past 30 years. i would be very very grateful for some advice as to what to do next. when i spoke to the neurologist re hughes he said he didnt think it was hughes as stroke didnt show up on my last mri scan although he did admit he thinks i have had a couple of tia's. (this is a very very shortened version of whats been happening over the last 5 months although as said previously have had many symptoms for years now)
Any help/advice would be very much appreciated as am totally fed up with pain all over, headaches, visual problems, memory loss and speech problems to name but a few.
Sorry for the moan!