Most of us: Have managed to get some... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Most of us

MaryF profile image
MaryFAdministrator
6 Replies

Have managed to get some good care, although the path can be long... but there is a very good petition which needs to grow legs.

epetitions.direct.gov.uk/pe...

Mary F.

I have signed and passed it on to every contact I know, who are now busy doing the same.

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MaryF
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jetjetjet profile image
jetjetjet

ya - mary , read your blog - would it make a difference where i am from as far as signing goes , get rite back please -thurs at 1:54 pm ---- jet

MaryF profile image
MaryFAdministrator in reply tojetjetjet

Thanks Jet... but you need to be UK citizen for these things I think, best wishes. Mx

jetjetjet profile image
jetjetjet

hay - mary - what if i told them i am from new england, thats the part of country i live in.ha ha ha - just some good humor- to a good person- your friend -----jet

SueLovett profile image
SueLovett

You might get away with it Jet. Somebody might think you live in England and are a labour supporter!

Storky profile image
Storky

I agree - Signed it and passed on.

MaryF profile image
MaryFAdministrator in reply toStorky

Thanks x

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