does anyone have problems with their heart?

just came out of hospital yesterday having had a suspected heart attack. However, an angiogram showed no damage although I went into spasm. Whilst it was being done. Excruciating! Still no answers as to why I am getting pain. Now awaiting echocardiogram and being treated with bisoprolol, ramipril and diltiazen. Any suggestions?

10 Replies

  • Hi, Regular pericarditis... probably my lupus bit!! Mx

  • Cardiac Syndrome X It is a form of idiopathic angina which gives all the pain but without the normal reasons i.e. blockages or narrowing.

    I had this after my Stroke, was rushed into a cardiac hospital for a angiogram expecting to have stents and nothing was found. Apparently this can be linked with APS.

    Since being on Heparin my symptoms have almost gone. I had to stop the Bisoprolol as I put on weight and it didn't really do anything.

    My GP suggested I take Diazepam when I had an attack and actually it worked quite well!

  • I have Paroxysmal Atrial Fibrillation and take sotalol.

  • I have this too. I had to come off sotalol because of chest pain. I am on Pacerone now and hoping it will stop the afib. The next step for me is surgery. I think it is related to my aps and Lupus.

  • I have been rushed to hospital with a suspected heart attack and been sent to our regional specialist hospital 150 miles away but after scans etc it was discovered that apart from having unusal T waves it was discovered it was another PE i have also been investigated for angina with the same result. I do get left sided pain from time to time but there doesnt seem to be any expanation, Hope you get a satisfactory diagnosis soon

  • I have Paroxysmal ~Superventricular Tachardyia which was diagnosed 5 years ago, but have so many palpitations now. They said that they could do an op, but at this minute cannot bear to be an inpatient.

    I am on Atenlol - have been on Carvedilol and Ramipril but Rampril caused really bad cough.

    Excuse my spellings - as my brain is not functioning properly.!!!

  • Hi I have possible coronary syndrome X . There seems to be no conclusive test for it. From my reading it can b e caused by clotting in the very small blood vessels in the heart. This causes the surrounding muscles to spasm causing pain like angina or heart attack. It can be brought on by stress exertion or low INR. -I found that I get reliable relief from cayenne tincture . I take it hot chocolate or in water. I am no longer frightened that I may have to go. To hospital. When I get attacks. I have read that there are low rates of thrombosis in countries where peopele eat a lot of chilli. - know that's a complex thing to prove cause and effect. I think it acts as a vaso dilator but much more gentle than the GTN sprays wheneverr I had those I got really horrible and scary drops in blOod pressure I always carry iy in a dropper bottler in my handbag and my family all know to make me a drink with it when the pains come on. As its a widely used food I feel confisdent. About its safety. Alsdo getting pains is also a warning to me to slow down so I don't just take the cayenne and soldier on . I will take these easy afterwards too. Anyone interrested will find information about its properties on the internet. Also in hospital my pain was relieved by oxygen because it dilates the blood vessels but the doctors thought it was psychological dependence on oxygen. Diazepan works by relaxing the muscles. Hope that helps. Ann

  • I have right ventricular out flow tract tachycardia, causes chest pain, had ablation with no effect, been on bisoprolol, verapamil and now flicanide. None seem to keep the ectopics at bay, when INR drops or i do to much makes them worse.

  • Wow, once again i didn't realise that so many suffered, I also suffer Paroxysmal Atrial Fibrillation and what they call vasospastic Angina, which is were the blood vessel go into spasm, feeling like a heart attach pain wise, but not - for this i use GTN, 2 sprays every 5 minutes for 20 minuets which gives a blinding headache and sometimes no relief at which point I take oromorph (liquid morphine) I take diltiazam for the AF which helps with the racing heart but apparently my heart still goes out of rhythm, giving my palpitations but nothing like when my pulse was running at around 200! They won't even consider doing the ablation on the heart due to the APS and lung problems, so I live with it, and sometimes end up in hospital and sometimes not.

    Hope you get it sorted

    :) Lesley

  • thanks to everyone for their replies. I will have lots of ammunition and info to take to my local hospital and also to St Thomas's as my next appointment. There is in February. By the way, the conquest hospital in St Leonards, East Sussex knew about APL S without my having to explain everything. A big tick in their box. I think! Thanks, Stella

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