Happy New year!!!: Well as you can see... - Hughes Syndrome A...

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Happy New year!!!

jessielou profile image
14 Replies

Well as you can see its 4am and we've just finished. Left al downstairs kicking the stragglers out. Go home to bed now people!!

Anyway just wanted to wish you a healthier, happier 2012!!

Sending huge gentle hugs to you all. Lots of love sheena xxxxxxxx :-) :-) :-)

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jessielou profile image
jessielou
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14 Replies
jetjetjet profile image
jetjetjet

the very same to you and yours , the bars over there stay open that late??or just days such as new years etc. i stayed in - sratching, itching and taking benadryl- im still so red if i were to get into the ocean, id end up on a lobster boat with rubber bands on my arms. lets all hope for a happier, healthier , prosperous, new year and u guys get kristina. speaking of her, she should be on her way here , ------------jet

jessielou profile image
jessielou

Hi jet

Hope you not so itchy n scratchy today, just occured to me have the docs checked liver function cos liver problems can cause this sort of itching if its struggling?? Also my mum gets cellulitus especially under stress and that gives her itches n rashes, the docs give her steroids, antibiotics and steroid cream.. Mum another autoimmune mystery!!

Bars not usually open that late, but new year an exception, we actually closed bar at 2 they just not want go home bless em!!!

Have fun with kristina, cant wait to meet her!!

Thinking of you and yours. Take care extra gentle hugs love sheena xxxxxxxx :-) :-) :-)

jetjetjet profile image
jetjetjet

GOOD MORNING SHEENA_LORD OF THE PUB_KEEPER OF THE ROOST.well, i think its still moring there. they have checked my liver{ a number of times] its been slightly elavated, bot not a concern, i guess? hives gone, still itchy and a little red skin on ears, nose and cheeks skin peeling , feel like a snake sheding, all theses spots i had bad swelling. i havent heard back from doc in dartmouth yet i think hes still on vacation. but the number of meds i take may be it . started 400 mls of pleq.after 2 weeks at 200 mls was in mid second week when this all started. you had mentioned it going by weight? speaking of wich i have gone from 173 to 181- maybe prend. that is not good for a.v.n. the walk i did the other nite made me sore-hips, knees ,feet- this usually not a problem - this time yes. really need to talk to doc chou up there in dartmouth, my vacationing rheumy. he has made mention of hematologist, maybe they can shine a lite on my wacko system. still waiting to hear from the wild one, maybe today ill let you know asap i hear ----- lobster man

Suzypawz profile image
Suzypawz

Hugs and good wishes for you & your family Sheena xx

jetjetjet profile image
jetjetjet

hi suzy- hope you had a wonderful x- mas and a very happy new year, staying somewhat sober, but still none the less had fun ,been checking out kristinas site , nothing new, dont know where she is or how far she is along with her move. thanks again for the great pic of you , sheena and the crew. im going to try to get it blown up .when and if kristina gets here we have talked about getting some pics of our own. hopfully i wont still look like a lobster, thats moulting- still a little red, hope this is the end of it all?????? always a pleasure to hear from you stay well and sassy ---------- almost some what normal -----me

Suzypawz profile image
Suzypawz in reply tojetjetjet

hi jet....hope you you dont look like a lobster for much longer......

glad you liked the image of the girls!

we had a good xmas....not as 'dramatic' as last years!....long story!!

Hope you had a good one, all the best, Sue :)

jetjetjet profile image
jetjetjet

suzy- when i start my computer class christmas present from kristina , just maybe i will learn how to down load pics from camera and send them out to you guys . some real niece, mountains here in new england. i could become a pro pic taker, what do you think about that ----- i would be so proud!!??!!??. ----- me

Suzypawz profile image
Suzypawz in reply tojetjetjet

I would be proud of you too :) like mountains! nice scenery & the outdoors.

Take care :)

jetjetjet profile image
jetjetjet

sheena- havent heard from u- hope every thing is ok, just sitting home waiting to hear from dartmouth , was doing pretty good till this morning , looks like a relaspe, skin drying up and falling off, rash returning, itchy as h---. we are doing the hurray up and wait game, i hate having to wait on phone calls, if i have to drive up there its 1.5 hour drive , depending on traffic- o- well be well my friend ------ jet

jessielou profile image
jessielou

Hi jet

I'm ok. Sorry not been in touch. Think I startin the new year with a heck of a flare. Swelling legs, rash on face, wheezy chest and pain everywhere. I guess i knew it was coming, been doin way too much. So its bed for me for a few days. Inr 1.9 so that not helping. Brain fog is awful.

Sorry your rashes etc getting worse again. Looks like your new year not starting great either.

Hope you have good time when kristina gets their, go for it with photography would be proud too.

Hope you feeling better soon.

Take care extra gentle hugs love sheena xxxxxxxx :-) :-) :-)

jetjetjet profile image
jetjetjet

sheena - what does your rash look like?? it sounds like you need some t.l.c. for yourself- take your few days or longer what ever it takes. kristina is here safley, have talked to her a couple of times, shes pretty tired. hate to meet people when i look like this, trying to keep up beat , not get into a slump. thinking good thoughts for you, for a quick comeback.-------- as always your good buddy jim

jessielou profile image
jessielou in reply tojetjetjet

Hi jet

sorry hon, crazy few days. Brain gone to mush!!

Rash is lupus flaring, wolfy mask is back, mmmm nice!

Keep positive my friend! Is all any of us can do!!

I'le be better when silly inr hits 3 or more.

Take care gentle hugs sheena xxxxxx :-) :-) :-)

Thanks Sheena - Happy New Year to you and your clan.

Wishing you a marvellous 2012!

Tx xxx

jetjetjet profile image
jetjetjet

glad to hear from you my friend- in hopes that our rashes leave us both, my basset hound look is getting better, but not fast enough for me, still havnt met up with kristina yet but working on it , spending alot of time dealing with my dad. moms holding her own so far anyways. going to work on some pics for you guys ---- always a pleasure hearing from you . --- your buddy ---jet

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