Quick hi!!!! :-): Hi all just managed... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Quick hi!!!! :-)

jessielou profile image
29 Replies

Hi all

just managed get data signal on silly phone.. Hope you all ok. Miss you all too. Will be back as soon as internet access sorted. Got loads of cleaning n moving in to do. Pub going well.

Inr way too high now cant win. Docs panicking. Chest still bad but hey ho, keep smiling!!!

Sorry not around. Thinking of you all.

Take care. Extra big but gentle hugs love sheena xxxxx :-) :-) :-)

Ps jet its too cold for swimming Atlantic. Hope your dad ok hon.xxxxxxxx :-) :-) :-)

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jessielou profile image
jessielou
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29 Replies
jetjetjet profile image
jetjetjet

sheena! sheena ! sheena! our lovely, long lost sheena, im so glad you remembered my name its been so long. thanks for asking about dad , hes back in hospital, dam near lost him this time. today is sat. they are talking about moving him back to nursing home on monday. i dont know ????? but in your absence our buddys stepped up and took care of me in your place, thanks to all . paddys concern , suszs boots, christina phone, marys wit. who knows some day i may show up at your pub for a quick -white russian , so long as i leave soon enough for the swim back, they will call me barracuda or i hope not titanic. on a serious not. have you heard of being on warfaran, and hydroxychloroquine at the same time ? am i looking for trouble???? thanks shark bait . ps they all know that you and i went to different schools together but you could always spell better than me. cant wait for reply O_BOY [ jit ]

jetjetjet profile image
jetjetjet

hay susz can i borrow one of your boots i thing for chistmas i should use them on christina, we got to get her back on tract. she is threating. me with a christmas visit, i hope so , may be she would be more comfortable with my logger boots being of this area. i guess we will have to wait for her coment on this on, or maybe a slipper. ha ha ha horray me

Suzypawz profile image
Suzypawz in reply to jetjetjet

No if you want them you'll have to come & get them!! get your scuba gear on & start swimming now....you may make it for xmas!!!

I must have about 25-30 pairs so have any you want!....I only have furry slippers!! :)

Suzypawz profile image
Suzypawz in reply to Suzypawz

( Whispering: ) hey Christina.....I'll post you some ready!!! he he he :)

jetjetjet profile image
jetjetjet in reply to Suzypawz

furry slippers an a long , silk gown with a fuzzy collar, hair in rollers standing in front of your boot shelves, with the pairs of boots not matching and on the wrong shelf, and a face mask on . o my god , how much is scuba gear these days, of course the gear would have be red for the holidays. i will look like a fishing lure going thru the water.

Suzypawz profile image
Suzypawz in reply to jetjetjet

you funny!! :)

You really do have a vivid imagination!!! or are the tablets working well?!!

I know mine work quite good & make me hali...halluc....haluci..... see things!!! oh where's Sheena?!!!! we need help with our spelling!!! :)

MaryF profile image
MaryFAdministrator

Yes...well I need some further wit this week in order to deal with my new conditions otherwise there will be a chronic sense of humour failure! Mary F x

Suzypawz profile image
Suzypawz in reply to MaryF

I hope you're OK Mary? :(

Talk to us hun, we are here for you :)

I hope you still have your sense of humour....it sometimes helps us through these Hughie moments xx

MaryF profile image
MaryFAdministrator in reply to Suzypawz

Yes, and hello... thanks.... I am researched out. I have psoriatic arhropathy - (member of the correct alliance for that), sgroens. and now finally diagnosed by the correct practitioner with hypothyroidism and adrenal problems... all in hand... and I am afraid I have been very unfaithful and blogging on a different forum to make sure that my humour stays intact.. back to St T's for my appointment for Hughes Syndrome in a week and a half... so grrrrrrrrrrrrr etc etc Mary F

Suzypawz profile image
Suzypawz in reply to MaryF

Hi, there's nothing wrong with being on another forum too :)

As long as you get the support needed or advice too thats good.

Keep your sense of humour going hun wherever you can :) hope your appointment goes well, let us know how it goes,

Sue xx

Storky profile image
Storky

OH Dear Mary.. We can't have that! What are these new conditions? Medical or otherwise. Can we be of an assistance??

MaryF profile image
MaryFAdministrator in reply to Storky

Yes, and hello... thanks.... I am researched out. I have psoriatic arhropathy - (member of the correct alliance for that), sgroens. and now finally diagnosed by the correct practitioner with hypothyroidism and adrenal problems... all in hand... and I am afraid I have been very unfaithful and blogging on a different forum to make sure that my humour stays intact.. back to St T's for my appointment for Hughes Syndrome in a week and a half... so grrrrrrrrrrrrr etc etc Mary F

jetjetjet profile image
jetjetjet

hay mary whats going on with you , what ever, we are here for you, your friend jet

MaryF profile image
MaryFAdministrator in reply to jetjetjet

Yes, and hello... thanks.... I am researched out. I have psoriatic arhropathy - (member of the correct alliance for that), sgroens. and now finally diagnosed by the correct practitioner with hypothyroidism and adrenal problems... all in hand... and I am afraid I have been very unfaithful and blogging on a different forum to make sure that my humour stays intact.. back to St T's for my appointment for Hughes Syndrome in a week and a half... so grrrrrrrrrrrrr etc etc Mary F

Suzypawz profile image
Suzypawz

Missed you Sheena hunny :)

Me & buds are coming to see you at your pub as soon as you are settled!

Do you want a bon Jovi duo there one day? the whole band wont be able to do it, but Bob & Nige may be able to do it for you a little cheaper!!!

Hope your inr settles down soon, thinking of you,

Sue xx

MaryF profile image
MaryFAdministrator

If anybody wants my long winded path to humour recovery privately emailed will do so. Mx

jetjetjet profile image
jetjetjet in reply to MaryF

mary i would love to , but one little problem ???? this is the one and only way i can talk to you. so get well and be well and please stay well . you have the wit you buddy jet

jetjetjet profile image
jetjetjet

my dearest suez ,you get a picture of your group of friends [BOOTS included if course ]and put it out here, i cold print it and put it on my wall, as high as i can reach anyway about 5 ft what do you think jet

Suzypawz profile image
Suzypawz in reply to jetjetjet

Do you have a foot fettish Jet??!!!!

I will get you a pic' soon! :)

jetjetjet profile image
jetjetjet

no , no foot fetteish that im aware of BUT got to say you on the other hand may with all those boots you have. if you got the pic at sheenas pub. then i would know what the pub looks like , and you and sheena and whom ever can get in pic to. but i am never going to mention your -------- again. but you could accidently show your favorites. well im waiting for your thoughts jet

Suzypawz profile image
Suzypawz in reply to jetjetjet

no I hav'nt a foot fettish....just love my boots!!! I dont own shoes or handbags like most women...I just love boots!! :)

I put a pic' on my web/blog for any that want to see them!!!! even you Jet!! then you can put them on your wall!!! :)

We will get the pic' of pub, Sheena, me & whoever wants to join us soon!!!

Hope you are well matey :)

MaryF profile image
MaryFAdministrator

youtube.com/watch?v=97aB71F...

tee hee

Storky profile image
Storky

Mary's back!!

MaryF profile image
MaryFAdministrator in reply to Storky

I never really went anywhere...other than cloak and dagger visits to other forums to be informed and let off steam..not wishing to blather about hypothyroidism and adrenal fatigue on the wrong forum.. zzzzzzzzzzzzzz oh dear I seem to have nodded off again etc! MF

Suzypawz profile image
Suzypawz in reply to Storky

yey...Mary, you're back with us in 'the funny world'!! xx

paddyandlin profile image
paddyandlin

well its nice to see that

Sheena has support by the way we miss you !!

Mary has her humour on full

Sue is still showing her rocker instincts lol

and

Jets foot fetish is till going strong

and Hughes is still supporting

what a family we make lol

Suzypawz profile image
Suzypawz in reply to paddyandlin

I'm off me rocker more like!! :)

jetjetjet profile image
jetjetjet

jess- need you hun , need a fix------------------ at a lost, been to long ---jet

jetjetjet profile image
jetjetjet

suzy , paddy,mary , would like a note also, ben lost and confused, comes with age , or something like that?!?!?! just to much going on, more than my little brain can handle ---- merry christmas, one whole lots of better feelings in 2012, i guess thats it for now???------- jet

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