Does any1 have Lupus with Hughes and lives in Indiana?

[Moonlightonly]

[jetjetjet]

hi moon- on 15 th sept 2011a person named lene answered to the [ any people in north eastern u.s. with a.p.s. ] you can try to see if you can in touch with her. let me know how you make out. but you can always get good info and support from people on this forum people from u.s. and u.k. i am primary aps with 3 other blood disorders and avascular necrosis, but no lupus jet

[jetjetjet]

sorry moon i had brain cramps lene is from indiana oops jet

[paddyandlin]

Hi Moon

welcome to the group

I think these is the original message Jet was on about

hughes-syndrome.healthunloc...

hughes-syndrome.healthunloc...

I know there are a number of memebers from America as well as other countries on the group.

There is also so support from other groups as well will post them up when my brain fog lifts

paddy

[MaryF Administrator]

Hello, lots of people will introduce themselves to you on here, plus you will eventually get contacts in your area, this is also a good source of info in USA - americanaps.org/. The Best of luck. Mary F x

[Hidden]

I only have APS, but I'm from the Cincinnati, OH area.

[Lene]

Hi, I am Lene' and live in Indy, but my sister is the one with APS, she is currently in a nursing home. In addition to the APS she has renal failure, is diabetic and also has COPD. Are you in Indianapolis? We have been wanting to find folks in our area that we can share info with, perhaps help one another. Please let me know if you are intrested in chatting with me.

[charlottejo in reply to Lene]

Hi Lene. I have APS and live in Indianapolis.

[Lene]

Wow, really! My ailing sis-in-law is in a nursing home on the south side with APS. She was originally diagnosed back in the early summer at StFrancis, Beech Grove. What side of town are you on? Are you still working? When were you diagnosed? Has your medical support been able to alleviate any of your pain and suffering? What are some of the symptoms you suffer from? My sis-in-law is only 63. She is no longer able to walk every day and is in renal failure. She is VERY foggy which is one of the symptoms of APS but she is also in a lot of pain because she has ended up with two compound fractures in her L2 (spinal) region. Please tell me some about you and ask me whatever you would like. Sorry for all the questions. Hope to hear from you soon!!! Bless you! Lene'

[Moonlightonly]

Lene,I have been waiting 2 hear back from u,I am still in NW Indiana, and have APS-Hughes, so drop me a line here in my mail box or contact me at [e-mail] hope 2 hear from u soon,Tina