been told by st thomas that i have te... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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been told by st thomas that i have tested negative for aps but they suggest i go on warfarin as i have a circulation problem

alanpaul profile image
4 Replies

i have most of the symptoms of aps hope warfrain sorts me out. will it get rid of my foggy brain?

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alanpaul
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paddyandlin profile image
paddyandlin

Most people who take warferin for there APS and get ther INR above 3 there symptoms seam to reduce. I have found i am on warferin and my symptomshave decressed.

I hope other will tell you how warferin has benifited them.

Paddy

Gadgets profile image
Gadgets

Hi Alanpaul

Warfarin got my life back!. I can not imagine going back to those dark days before. My brain fog cleared / improved once I went onto medication.

(I work full time and run my own company)

Good luck

Garry

Storky profile image
Storky

I have APS but am seronegative. I am on fragmin rather than warfarin as the warfarin did not suit. I had a stroke in January and assumed that all the symptoms were down to that.

I was sent to a speech and language therapist about the same time they started my fragmin and the speech therapist gave me some home work to do between the one month appointments. When I went back there was nothing on my sheet because there had been no incidents to report for me to write down and report back to her. Thats how good the Fragmin had changed things. What I thought was all stroke related was actually APS. Of course there are still residue issues but they are more physical but Im working on those too!!

If you have a similar reaction to me then the answer is yes!!

MaryH profile image
MaryH

Hi there, like Garry I do not know how I managed without warfarin. The headaches went with the loading dose and the fogginess has slowly lifted. I still get tired and often close my eyes during the day, especially when watching tv, but overall warfarin remains, for me, the wonder drug. Best wishes Mary H x

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