Off to St Thomas' in under two weeks accompanied by my daughter who has had a daily migraine for around a year and half! Some real progress made by seeing the right people. I have been busy blogging and fussing on another forum having found that I have hypothroid and poor adrenal function - worked out by my own detective work, as with all my conditions, plus of course the right tests. These two things new things - the hypothyroid/adrenal.. very long running as I had spectacular test results). which i have probably had for years, not picked up by anybody, (the story of my life), this included the sjgroens for years and the psoriatic arthropathy, have driven everything else mad and prevented me doing my physio, which has been in place to help with my conditions for years. Having spent a life time hardly being listened to for anything to do with mine or my families health - I have at least become self educated and skilled in getting places and working stuff out.
I thank the internet and the availability of medical and scientific papers, plus of course swapping on forums like this. for finally working it all out.
So... hypothyroidism and adrenal fuss will not get me more than anything else. I decided to right a blog every few days to keep my humour intact, it has made other people hysterical... so that is a start. I have always been good at long winded shaggy do stories... but of course these days having hughes fog and hypothyroid fog... I normally do actually forget the punch line.
Here is to more interesting research, my family is plagued by Hughes Syndrome and we all test negative!