I am new to this site, however familiar with APS/ Hughes Syndrome, its symptoms and difficulty in management. Recently stephanie and i registered New Zealand Antiphospholipid Syndrome into a Charity, although we are still working out the bits and pieces it is hoped that this may be a start for support and information sharing / resourcing for patients, and also clinically - provide some leadership in terms of representation at the next conference in 2013. heres hoping anyway
For me personally I was diagnosed in 1999 in Auckland via symptoms on chorea. i then moved to Brisbane Australia and since then carried through in neurological difficulties epilepsy and pregnancy loss. I have now returned to Auckland to live.
Anyway good to find this site after being reccomended to join by Patrick. thanks.
I will have a little snoop through it and see what it is all about.