hello everyone, have really enjoyed reading all your posts. i was admitted to tommies 8yrs ago by dr d'cruz for tests, had a positive mri and lumber puncture for ms but negative blood test for aps but had a history of 5 dvts and multiple miscarriage so needed to stay on warfarin forever . i was given cyclophosphamide (think thats how you spell it) prednisolone drip azothyoprine , well kept this up for a while but stopped after 12months now just have warfarin. i don't have any consultant for anything now and find things a bit difficult tried a local neurologist for a while but he didn't feel i have straight forward ms but doesn't really believe in aps, so when i asked him well what do i have he said he doesn't know so just left with my poor old gp to deal with but feel a bit lost as i don't feel i belong anywhere. on my doctors notes my official diagnosis is a demyelinating syndrome with blood disorder i feel ill with ms symptoms but they are relieved with high inr but find it impossible to maintain inr feel a bit lost and alone thanks everyone for taking the time to read my long moan , mully
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.