Have you been seen by a Neurologist? - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Have you been seen by a Neurologist?

paddyandlin profile imagepaddyandlin148 Voters
98
Yes been seen by a neurologist ?
50
have not been seen by a neurologist ?
16 Replies
ksal profile image
ksal

I've never been seen by a Neurologist, only by a Rheumatologist briefly, and a brilliant Obstetrician who originally diagnosed me and enabled me to have my two children.

lucky1 profile image
lucky1

I saw a Neurologist as part of my stroke recovery. That was in the early days. I have not seen one in the last 12 years.

marycath profile image
marycath

Along with seeing many specialists over long time, the neurologist in 2009 had no knowledge of APS, so would not do a MRI, though I'd had 3 severe strokes over longtime

I saw one before my stroke who failed to dx APS.

The results of APS are always neurological so why wouldn't everyone go to one?.

3boys profile image
3boys

Neurologist, because of my stroke. My OB Dx me. I had a stroke a week after my son was born. I was also in heart failure.

AllyB68 profile image
AllyB68

Neurologists I have seen have always passed me straight back to rheumatology who say aspirin is ok for me as never had a clotting event ( other than multiple miscarriage ) never found anyone who will help with headaches, fatigue or strange numbness on left side of body

CanaryDiamond10 profile image
CanaryDiamond10

I saw a neurologist upon having a stroke/tia, whom, after a ten day hospital inpatient stay diagnosed Central Nervus System Vasculitis. (CNS Vasculitis)That was over ten years ago. I was recently diagnosed with APS by my rheumatologist whom I see quarterly for other diagnoses.

Mommaleda profile image
Mommaleda

I saw a neurologist after having stokes after childbirh in 2002.He was the doctor who dx with APS.

kelgem profile image
kelgem

Have seen a Neurologist since I had a stroke 6 years ago and was diagnosed APS

didiz profile image
didiz

I have APS and SLE Lupus (cerebral involvement) so I see my Neurologist twice a year at the moment and currently see the Rheumatology consultant team every 2 to 3 months. However it is just over a year since the combination of conditions was diagnosed so after the next set of appointments I expect to be reviewed by both teams annually.

I have been told by my local hospital that if my MRI scan comes back clear from Guy's, then i will be referred to a Neurologist.

ASigmon profile image
ASigmon

Yes, I saw a neurologist after I had a stroke at age 48. I thought I was perfectly healthy with no risk factors for stroke. My neurologist's search for the reason for a stroke in a relatively young and healthy person led to discovery that I had APS –and had probably had it for at least twenty years.

1fnd profile image
1fnd

I have been seen by many neurologists including the Mayo clinic, and the National Institute of Health which told me I had a conversion disorder even though they also confirmed I have no psychological trauma past or present, but because my MRI was clean there was no reason for my neurological symptoms. (stroke like that would wax and wane) After almost 5 years I finally found answer myself and went to a hematologist who then officially diagnosed me.

greenlady profile image
greenlady

i havent seen anyone apart from once when had stroke 18 + months ago

I have seen several Neurologs since my TIA/stroke in 2002. I have still contact with a specialist when I need her help.The warfarin took away many of my neurological problems when I started one and a half years ago.