What sort of activities/exercise/spor... - Hughes Syndrome A...
What sort of activities/exercise/sports do you do on a standard week?
Please select all that apply:
I like to have a swim!
I like to swim too!
John.
I'm an avid swimmer. Sometimes it exhausts me but overall I think I'm healthier than if I didn't get in the pool 3 - 4 times a week.
I'm unable to exercise.
I am unable to exercise.
Hiking and resistance workout.
At the moment nothing but hoping to get some walking in when my eye has recovered from the next eye op.
I so wish I could do gym or something like I used to but alas not anywhere on my horizon now.
Same here as this week I was asked by foot specialist how long have you walked with a shuffle I could have cried this is my 29th year with Hughes / Lupus / Sjogrens and so much more so I just enjoy my life as best I can x
I like to hike. Not every week, but when I can.
Unable to do any exercise now _ sadly.x
walking is my key exercise and depending on the season, lawn mowing and vegetable gardening provides extra activity
Used to be a gym bunny and Zumba but have had to let my gym subscription go. 
I have been wondering how to get moving again! I was very active before, love to swim, riding horses, and anything outdoors. Now my muscles are weak, especially. my arms and legs. So how do you get on the move again? Any ideas for that? Tina
Just start small and try not to be hard on yourself.... try a bit of everything, swimming is great for building up muscle and stamina without impact and the stresses that can cause... most of all make sure that you are happy!
Tx
After long tiring illness, muscles loss makes activity hard right? Years ago I joined a ti chi/ chi gung class. I didn't stick with it when I moved, or do it long enough to carry on on my own, but it was just the thing to build me up enough to get back enough strength to be active again.
Once I had strength up, I got a job in a conservation charity (look up BTCV) we had many volunteers who came once a week to regain fitness following problems. It could be good for you too, as you get out in the fresh air, feel positive as you are doing something worth while, meet nice people, have a nice day out. Also, you are given instructions how do do things and at the very least someone with a first aid certificate and basic health and safety training is always onhand to make sure you don't over do it.
There are branches all over the UK, and you won't lose anything looking at your local branches website to see if they are doing something that interests you.
Agua therapy 3 times a week with a physio as I can no longer walk unaided.
Pilates and yoga every week, walking and a swim!
Although a wheelchair user I go with my carer to the gym and use the machines and do some swimming
I am unable to exercise at the minute, can walk no further than 300m on a good day. Hoping this will improve in time.
Don't have the energy to exercise. Surprised anyone with APS does.
Only 'exercise' I can be said to get is a bit of jigging about with choir choreography. Hardly aerobic!
circuit training, twice a week 
Go once a week to a neurophysio group to exercise
I go to a green gym and prune a few trees, plant lots of trees or do a litter pick for half a day and do a health walk for 1-2 hours on another. I also go gardeing.
calisthenics: touching toes, various back exercises designed by my physical therapist specifically for me.:
also back training designed by physical therapist. Also training arms and fingers as they hurt sometimes.
I am a dedicated yoga practitioner and instructor. Yoga has helped me in many ways and times with APS symptoms and in managing my mind.
I walk if I can get to where I want to be in under an hour (no hills) and bike if its flat with little traffic and won't take more than 40 minutes. Although a good cheap bus is available for all my needs if its a bad day, I find no exercise reduces my energy. I probably average two and half hours a day - brisk but not fast. The time I save using a bus, I pay for later being sluggish.
no one is mentioning house work, as making the beds moping the floor and cleaning windows exhausts me, I feel fine classing it as a work out.
Walking (I have two dogs) and horse riding. Hope to get to a zumba class soon too. I find just being out doors in the open countryside the best therapy and force myself to do it, even if I don't feel like it as I know I'll feel better afterwards.
Zumba for me, although i do a lower impact class than the normal
Iam unable to exercise.
For those unable to excercise have you considered movement to music in a chair, this is basic moves like arms lifting and lowering etc, I find the same issue but found this some help
I play golf once or twice a week and have an occasional walk.
But it does leave me fatigued. I go for a cycle ride sometimes too.I have to pace myself.
I take nattokinase and serrapeptase in place of fragmin and feel relatively ok.
My AF attacks are now fairly infrequent since my blood is thinner.
My main sport which I loved was racing single handed sailing dinghies and I was keen on badminton and tennis. I went jogging twice a week too. It did make me fatigued but overall I felt better for it.
I can't do these now since having a heart attack 4 years ago but enjoy the golf.
My arthritis is a handicap but this is also slowly getting less of a problem.
I found taking "Ateronon" (lycopene) beneficial.
I also take a high dose vit D3 and high dose of omega 3.
I take glucosamine sulphate and magnesium calcium and zinc.
Exposure to sun fatigues me so I use sun cream.
So overall I can continue some sort of sport.
To conclude I have found it better to exercise than not providing I space out the most vigorous exercise.
My husband walks when he can but he is still recovering from his CAPS last year so is doing very light weights as well (controlled by his physio).
Before that, he didn't have any serious symptoms of APS so was able to work out quite hard.
I remember some time last year answering a similar question. I could barely do more than shuffle for years and that was with extreme pain. Since turning my health around on natural products, I can now walk with ease, enjoying my walks instead of dreading them. As I get better, my walks get longer and I will be taking up another form of exercise soon
I honestly get the majority of my exercise in at work. I work with special needs children and the job is physically demanding. There is a lot of running, lifting, kneeling, and so on.
The thing that bothers me is that I have zero energy when I get home. I have small children at home too, and I feel like I use up my energy at work and have little to contribute at home.
I walk short distances when can. I have to take Norco upon rising as my whole body aches/hurts. Hoping to get a routine going soon.
I have some exercise machines in the house, and try to do some daily two sets of 15 minutes in an effort to keep myself supple and send my weight in the right direction, which is no easy task with hypothyroidism, but it is finally shifting, with diet taken into account also. Mary F
I try to walk
Hi
Following stroke in January, which put me on my backside, I've just recently started a very gentle and slow swim, once a week for now. Left leg not cooperating, lazy thing.
Gentle hugs love Sheena xxxxx
I play golf 2 to 3 times a week but often only 9 holes because 18 leaves me sore and fatigued the next day despite effective blood thinning and many suplements and a sports tailored diet.
But I do hit the ball a long way.
I can only play because I take Nattokinase and Serrapeptase. Without these I am unable to play at all.
I have made a point of studying sports nutrition.
I had to give up Sailing which I loved because of atrial fibrillation.
If I get my hypothyroidism treated then I will take up sailing again.
I cycle too but with a couple of 20 second sprints to reduce my insulin resistance.
Water aerobics and water zumba
