improving my walk

[Lilylulucat]

I trying to get around but it’s more difficult every day.

I am going to Parkinson’s Boxing 3 days a week and water fit classes 3 days per week but I’m not sure it’s doing anything for me

Any suggestions?

[Bristolgirl]

It is doing you good! all exercise is good and yours sound Brilliant. I do 20 mins qi gong every day on youtube and walk for an hour

[daddyt in reply to Bristolgirl]

Sometimes the benefits of exercise are not overtly obvious, but assuredly, exercise helps.

Tim

[Goodact]

The best thing my partner does is hydrotherapy in a group at the pool. We are very fortunate in Western Australia to have Visibility which is our guide dog organisation and they recognise PSP as a vision problem. We go to the guide dog gym on Tues and on Fri they have a group session It has been so good I am about to try to take my partner to the pool on my own one more day a week

[Lilylulucat in reply to Goodact]

I know how much my water fitness classes make me feel better ❤️‍🩹.

[timbowPSP]

HI LILLYLU,

Really admire your efforts and positivity.

For me as for others, exercise is so good, and the endorphins love it! Read Branko Lugovic HARD DAYS from Amazon. I can send more info to you if u give me ur email add less, pls.

Best wishes Timbow PSP

[Lilylulucat in reply to timbowPSP]

Thanks for your reply and I will definitely look into the book HARD DAYS

[Lilylulucat in reply to timbowPSP]

On your advice I have Oder the book Hard Days. What part did you find the most helpful? Thanks

[timbowPSP in reply to Lilylulucat]

I just replied to you .... where's it gone? into the bin? Best part is mostly whatever I'm reading. Just now it's Treatment, pp.60-70. And tomorrow ........ Hope its useful! Best TIM

[Lilylulucat in reply to timbowPSP]

Thanks TIM

[Purrlie]

Hello Lillylulucat,

I credit my husband's twice weekly sessions with our athletic sports therapist/kinesiologist with increasing his mobility and then helping him hold the line, long before we had a PSP diagnosis. All and every exercise is good!

Big hugs and best wishes, Purrlie.

[Lilylulucat in reply to Purrlie]

I do so much more exercise now that I’ve been diagnosed with PSP than I ever did before.

[Bergenser]

My husband has a neuro-physiotherapist who visits weekly and gives him exercises that help with his balance. She really understands how the brain and body needs help to work together in PSP.He's benefited from using "Nordic Walking sticks" for walking outdoors, this seems to improve his balance, and long walks (with plenty of rest stops) are good both for his mood and his overall fitness.

There is also an App called "clock yourself" that helped him exercise the brain-body connection. You can set the speed and difficulty so it's easy to see if there is any improvement.

It's difficult with a progression disease to see when things are helping however slowing down the progression is a huge benefit. Mostly we aim for maintaining his functional level and/or bounce back from set backs.

I wish you all the best, I sure your activity level is helpful to slow down this disease.

[timbowPSP in reply to Bergenser]

Hello Berg .... calling you from the UK.I am male now 81, diagnosis at 76, and have a neuro-physio, like ur husband. Just starting on balance xercises. In his book on his PSP journey Croatian Branko Lugoviv emphasises exercises. 'HARD DAYS' is his book £12.70 from Amazon. Recommended.

I have written a blurb, a bit similar, 6x A4 pages. Happy to send you, if u give me ur email address.

'Keep on truckin' ..... and my best wishes TIMbow

[Lilylulucat in reply to timbowPSP]

I have ordered his book. I will be 81 the end of November and was diagnosed in the fall of 2020.

Be good to yourself.

[Richard33]

Lilylulucat (great name!)

Exercise is the one sure thing to slow this disease down and keep you mobile at less risk of falls etc. A static exercise bike is great - cheap and you can do it everyday at home for 10 minutes while watching TV!

Richard 🙂

[Lilylulucat in reply to Richard33]

Great idea 💡 Thanks 😊

[Lilylulucat]

Great idea 💡 Thanks 😊

[easterncedar]

LSVT Big did wonders for my sweetheart’s walking. We had a certified therapist who worked with us once a week for maybe 10 weeks, and then we had exercise routines to do at home. My guy started out relying on a cane, but walked an obstacle course and down a long hall unsupported at the end.

[Gymsack]

you are 80 and you go to Boxing exercise 3 times a week, and swim 3 times a week . What do you do with that 7th day?

slacker . you need some motivation , maybe try actually boxing . how old is that picture 20 , 30 years old ? Granted you were a nice looking women, back then .

😷😷

You are a marvel , I am 76 following in your foot prints but not as successfully .🥴

Be happy

You can be happy if you have a mind to

where were you in 62

youtube.com/watch?v=hWZ-qJR...(Not working as expected?)

[Lilylulucat in reply to Gymsack]

The photo was taken in 2021. I had parents who had good skin.

I feel that I want to relax a little.