My poor mum is near the end I fear. She now is less than 5 stones in weight and is really struggling to open her mouth and swallow. Her doctor, who visits her in her nursing home, has said she is at ‘end of life stage’ but even after all these years I still can’t quite believe it. It seems so strange to say but she has been so ‘well’ throughout this terrible disease. In the last five years where she has been severely affected by the progressive nature of PSP she hasn’t been unwell once - she hasn’t even had a cold! No chest infections or pneumonia. She had been determined to stay with us. But I fear she is now losing the battle. She is so rigid, she lost her ability to say a single word about 6 months ago - around the same time she moved on to fully puréed food - since then we have been struggling to get any food in to her and her weight loss has been rapid. Yet, I know she still understands all of the stories I tell her about us and her grandchildren, a couple of weeks ago my daughter got top grades for many of her school exams (GCSEs) and I could see she understood - her eyes slightly brightening when I told her. I feel she doesn’t want to leave us yet but this terrible illness is determined otherwise. I’m a spiritual person, but not religious, but I would be grateful if, however you do it and whatever you believe, that you would say a prayer or a wish for my mum, Margaret, to leave us peacefully and for our family to be able to cope with what lies ahead. Thank you. I’m sending lots of love to you all and hope there is peace in your journey too.
Mum’s nearly free : My poor mum is near the... - PSP Association
Mum’s nearly free
My heart goes out to you at this very difficult time. I will offer a prayer for your mum and your family. Be strong, you'll get through this darkness.Lots of love to you x
My prayers are with you all to help you have the strength to cope with what lies ahead and to help your Mum let go peacefully knowing that you will all be supporting each other with love. Love AliBee x
I feel for you. My prayers for your mother and the family. Take care of yourself.
Sending hope that your mum goes peacefully.
I know what you mean when you say your mum still understands. My mum has little speech now so communication is getting harder but I know she takes in everything we tell her. It’s so hard.
A big hug to you and your family to get you through the next stagex
Sending love and support across the Atlantic to you and your family Hdee. And sending prayers out to the cosmos for Margaret . Here's to fair winds , following seas , and a safe passage ! Lots of love to you all 💜
❤️ xx
🙏 thinking of you and praying for God’s peace for you.
Sending love to all xx
sending love n comfort at this difficult time to your mum and your family ❤️
We lost our beautiful mum last week 💔 she had suffered so much, unable to swallow or speak 😞
We played mum her favourite CD, Don Williams in her final days and reminisced about old days, I knew she could hear us all
My thoughts are with you all and sending lots of strength your way xxx
sending love & hugs to you ❤️xx
Praying for a peaceful journeys end for your Mum Margaret and strength and love for you and your family.
I feel for you at this very difficult time. Time shortly for a palliative care team to be called upon for advice and help, you don't need to bare all that's to come on your own🙏
Sending hugs and love to you all. Purrlie
Thinking of you, your mum and your family, I will offer a prayer for you all,take care.
Hdee,
Thinking of you and your Mom during this critical time. I wish and pray that your Mum has a peaceful death and that love and time will mend your broken heart. It is so sad to lose her, Thinking of you both.
Sending you, your lovely mum, and family a big hug and a peaceful journey ahead. She is lucky to have such a family.
reading your stories seems a movie that i am watching right now. and it matches with what you all say in this chatline. my outmost best.
Our prefers. Please set up hospice, and try to make her comfortable. Try not to use any agresdive medication/surgery. 🙏
Our prayers too. It is a very difficult time for you all.
Thinking of you at this very difficult time. I went through this stage with my husband earlier this year and I think it is the worst time - I felt so helpless. Thoughts and prayers are with you.
All my thoughts are with you and your mum and family. We are also in the same situation, mum has CBS and is in her last days of her life, she is also so rigid, unable to open her mouth and swallow. I haven't heard her voice in almost a year now. I thought after all these years of her being sick and preparing myself for the end that I would be ready for it. But I'm really not, it feels terrible to see her go like this.
Swallowing problems - snack food recommendations
How to talk and treat them. 
Fed up and guilty 
