Eyesight problems

[Joluu]

Hi just thought I'd share our recent eye appointment experience. Mum has had eyesight problems for years- always blamed on PSP but with no proper assessment. After a 2 year battle to get a referral to the local eye clinic we,ve been today. Some of her problems are related to PSP but she also has Fuchs dystrophy and has been missing out on treatment for it because of the assumption that it was the PSP☹️

The moral of the story... Fight for a proper assessment if you're struggling with eyesight changes it might not be the PSP after all!!

[pmcdonough1]

You are a wonderful advocate for your mum. Keep up the great work.

[David750]

Joluu, your experience is so common amongst us carers having to fight for the right support. I congratulate you on your energy & persistence. All my very best wishes 🙏