Treatments for PSP

[SEADIVER]

Has anyone. Looked at stem cell therapy for slowing down PSP. Also nano patches therapy?

[Millidog]

Hi If you use the search box at the top of the page you will find quite a lot of posts about this subject. Alternatively open up your post and scan down to bottom of page and you'll find relevant posts.

[Dickwin]

Seadiver, I have been a member of this online PSP group, and a second online PSP based in the U.S. I have been in both groups for 6.5 years. During that time, there have been multiple members in both groups that have gone in for the treatments. It was an especially hot topic 4 or 5 years back. If you follow Millidog's suggestion, you should be able to find multiple entries from the last 7 or so years. My recollections of the results for those who have sought out Stem Cell therapy was mostly negative. A large majority did not feel that the Stem Cell Treatments had helped them at all. It is definitely a buyer beware situation. I wish you luck .

Warm Regards,

Dick

[mumnme]

Hi Seadiver, my mother 79 with FTD and just diagnosed with PSP very rapid decline. In a home now due to many falls and myself having to work full time and being the only support We saw a neurologist last week and inquired about stem cell. He said we are no where near this treatment for the brain.he said they cannot inject stem cells and tell them to target specific areas of the brain.

I asked how long, he said as I said, she was driving 18mths ago, so to expect the same same rate of progression over the next 18mths. So sad to watch someone who could never sit still to being in wheelchair having to he taken to the toilet and showered.

So unfortunately for your wife, my mother and all the other dear souls out there, no treatment available atm.

I wish your wife and yourself, strength and love.

Just make the most of everyday.

[SEADIVER]

Thanks everyone for the heads up on stemcell treatment . It's so easy to fall for anything that you think could help the one you love and cherish.