Tremors

Joe has had some twitching but today he was getting them every few minutes.

Please, any advice appreciated

[Kevin_1]

Hi

I'm sorry you are both faced with this.

Any new symptom of this sort of magnitude should really be put to a neurologist.

They may have means to control the symptom.

New symptoms might be indicative of a secondary or a new, condition and if this is the case catching it early could be important.

Tremors does not sound like PSP/CBD to me. I might be wrong. Some shaking, yes, or restless legs.

Hopefully someone else might be able to add more.

Best to you

Kevin

[lindaD_ in reply to Kevin_1]

my husband used to get a sort of spasm . which may be what you are talking about if he was in his chair he would end up on the floor ,also in his shower chair id wheel him into hall way where there was more room and on the way out he would start snd gradually slide onto floor .sending big hugs Linda

[Hidden]

My dad had these in t latter stages of PSP, which eventually manifested into his whole body going into regular painful cramps/spasms. At this point the nurses gave him intravenous medication to calm him down as he got scared and agitated. Eventually this was combined with morphine and he was calm and pain free.

I would speak to your medical team so that you have something in place if needed.

Sending you strength to carry with the fantastic job you are doing caring for your loved one.x

[Hidden]

Larry’s been twitching all his life. The source is a pinched nerve in his back due to his spinal curvature. Your husband my have developed a pinch nerve. Larry also has developed a tremor in his left arm which I am only aware of it when I take his hands to walk backwards with him as I move him around.

[SewBears in reply to Hidden]

Dear Jeff,

Were the doctors able to treat or do anything re the pinched nerve? 😢

[Hidden in reply to SewBears]

Larry’s had his back problem all his life. He’s lived the pinch nerve or whatever it is. As for the tremor in his left arm I’ve mentioned it with no reaction from the doctor. They are another possible PSP symptom.

[SewBears in reply to Hidden]

Thank you. No reaction from the doctor is maddening isn’t it? I’m sorry. It seems I’ve been getting the run around. Neuro tells me to go to a motor specialist and the motor specialist tells us to go to hubby’s general practitioner. The GP doesn’t have a clue about this disease. Later today, at a reasonable hour, I’m going to contact Social Services for advice and maybe get some help. It’s time.

And round and round we go. What a circus.

[Inarticulate]

Hi, Dad has cramps and spasms regularly and it’s been a regular occurrence for the last year but is part of his PSP. Agree with Kevin_1 that it is something you should discuss with your neurologist as it may be something new. Regards x

[AnneandChris]

Hi there

Reading your post, this is similar to Chris' behaviours I wrote about yesterday.

He arches his back and pushes so he is almost plank like. And he too has ended up on the floor.

When he does this his arms and hands shake.

We shall see what the GP says today.

Thank you for possibly throwing light on our problems too.

Anne

[Dickenson2]

John had a funny turn two weeks ago and the next day he had muscle spasms for most of the day but that has now passed x

[Nat08]

Please check that he does not have a urine infection as my dad started really shaking when his infection turned to sepsis as no one would listen to me x

[bgentges]

Dad just started have what I consider "spasms" more than tremors. His hand and arms shake and tense up. This just started the past week or less. Some episodes are very short, some last minutes. There seems to be no pattern, sometimes they occur come close together, others times there are hours before the next episode.

[Mtorres9235]

My husband has had tremors since his diagnosis of CBD in 2008. In 2015, his neurologist put him on Keppra 6.5ml. Seemed to stabilize. We took him on a short airplane ride in 2018 and (About 2 hours ) and then he had some serious seizures. We have increased the frequency of Keppra every 4 hours 3 times a day. Again this has stabilized both. Afraid to take him on any trips now though. He is doing fairly well although he has lost his words and is a two person lift. He can still walk with assistance slowly about 100 feet per day. Important to keep moving, we believe. It can be scary. I agree about getting support from informed neurologist. Hardly anyone else knows of the the complications that can come with this disease.

[Birdlover415]

I know you have gotten a lot of answers but I thought I would share my experience. My right hand and wrist are not only rigid but spastic especially in the morning. However, when I get nervous or surprised, it also acts up. Plus, I have had myoclonus spasms. My neurologist prescribed klonopin for that, it is working for me. BTW, I have CBD.

[Hidden]

Thank you. Please forward Klonopin strength and dosage.

You are so kind to post.

Please stay positive,

Rita

[crab2093]

Strange that you should mention this. I notice that CH has tremors (like Parkinson's?) now especially after a fall or a stressful tumble. I just thought it was part of PSP. Then a couple of days ago he took a tumble onto what we are calling "the day bed" which is a hospital bed that we are trialing in our lounge. If he wants to sleep in the day I tell him he must use the day bed. Anyhow he suddenly stiffened and was briefly in some sort of seizure I think. Then today he gave a massive sneeze when the Speech Therapist was here and went into some kind of breathe stopping spasm (seizure?) which lasted at least a minute until i managed to almost shake him out of it, Will call neurologist tomorrow. ... val