Final days

[BEST7]

Just a few words to let you know we are at home now for the final days. It was a battle with social workers and hospital officials to finally get dad home, thanks be to God he is here now with his family close by. I will stay in this forum and hopefully be some use to someone sometime who is yet to reach this part of their journey. Dad is comfortable so far, we pray he stays so. His family are here for him. He was diagnosed with PSP last October, Parkinson`s prior to that and Alzheimers 5 years ago....we know reading the information links shared on here that it was PSP 5 years ago so he got his correct diagnosis when he was already in the final stages but we were not aware of that. There is so much awareness and training required. Keep sharing your experiences and information links. I only realised there was a forum recently when I contacted the PSP Association asking if there were people in Northern Ireland we could contact for a support group.

Blessings

xxx

[AnneandChris]

Oh my dear, our thoughts and prayers are with you, your family and your Dad at this time. Take care and take heart In the fact that when the inevitable happens he will be released from this horrid disease.

Sending you love and hugs xx

[dollydott]

My thoughts are with you and your family.

I hope your dad remains comfortable and finds peace safe at home surrounded by his loved ones

Sending love to you at this sad time

Lynda xx

[AJK2001]

Thinking of you and your family, so glad you have been able to get your Dad home. xxx

[Toddet]

Thinking of you at this difficult time.

[Heady]

Hold your Dad tight, tell him you love him and it’s OK to say goodbye. He finally is control of this evil disease.

Sending big hug and much love at this very sad time.

Lots of love

Anne

[georgeg25]

My thoughts and prayers are with you all at this difficult time. It can be a lonely path to walk. Hold him close and tell him how much you love him. 💔🙏

[Beads0122]

Best7,

Covering your Dad, you, and your family now with prayers of comfort and strength during this stage of this cruel disease. Cherish these last days with your Dad, not remembering him now while experiencing the effects of PSP, but the knowledge of his life well lived and the love he has shown you.

Bobby

[Inparadise]

Prayers and loving thoughts for you and your family.

Bless You,

Kerry

[daddyt]

Hugs and prayers during this difficult time. Thank you for your choice like so many others to remain on this forum and to offer support.

Tim x

[Tippyleaf]

What a horribly difficult journey you have all been on. But now in the safety and comfort of home I hope your dad can find peace.

Sending you love and hugs Tippy xxxc

[Dadshelper]

Just have people around him and talk to him, he'll still hear you even if there isn't much response from him. Sounds like you are keeping him comfortable and at this time that's about all you can do.

Ron

[Cuttercat]

I’m sending you my prayers and blessings. Your family sounds lovely and will be a great help. At least he is home.

Love

Cuttercat

[Katiebow]

Home is best if it is at all possible, I felt privileged to be with my family at Bens bedside as he peacefully passed away just over a year ago. That memory is dear to me as I feel sure that he was aware we were all there telling him it was time to let go and be free of this terrible disease. After a dreadful few years I feel that his death was a good one, pain free and surrounded by those he loved and who loved him back. Let him know how much you love him as he leaves this world, isn't that what we would all hope for at the end of our lives.

Love skate xxx