AbbVie Trial pulled for PSP: Hi Folks This... - PSP Association

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AbbVie Trial pulled for PSP

Kevin_1 profile image
5 Replies

Hi Folks

This is the link for the news on the Abbvie Trial for PSP.

alzforum.org/news/research-...

Thanks to rriddle for posting initially.

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Kevin_1 profile image
Kevin_1
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5 Replies
ForkLover profile image
ForkLover

Yes we have had one of the 3 exit interviews already! Very disappointing!

JCRy profile image
JCRy

Thanks again, Kevin, for taking the time to post info.

Juliet.

I read how this was first tried sometime ago. They thought it was the delivery system that got poor result and changed the delivery which seems not to have made any difference.

ChingShih profile image
ChingShih

My mother-in-law was in this trial. It's pretty disheartening to have it cancelled. To go from feeling like there could be a light at the end of the tunnel to having your hopes dashed is rough. Also the care and attention she received no doubt helped her in having a more positive outlook about the disease. She wants to keep the neuro who was doing the study which is good. Now the other avenues can be tried like marijuana and cbd. I hope there isn't another plateau and she falls further because of this cancellation.

Kevin_1 profile image
Kevin_1 in reply toChingShih

We are still some way short of a cure, or a preventative treatment, but the progress is now quite fast.

CBD, or perhaps cannabis, might alleviate some symptoms, but it has not yet been tested on PSP/CBD. My wife said it made her feel more comfortable, but the downturns kept coming.

Wishing you both the best

It's hard journey.

Warmly

Kevin

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