Some advice please

My husband was diagnosed last year with PSP. It took a long time to get diagnosed but from what I read on here that seems normal.

His balance and walking is bad, his memory is very poor and his behaviour is deteriorating daily. He gets very aggressive both with myself and his carer (TAB). He can still pull it out of the bag when in front of other people though which at times I feel irritated.

Over the last couple of weeks he has reduced his drinking considerably and also his eating. He has become very sleepy and has been in bed since Sunday. He has twice been sick but not tried to get to toilet and last night he had an explosion from his bottom, he was in bed and it went everywhere. He was very confused afterwards. What I am asking is , is this part of PSP deterioration or possibly a bug?

[dollydott]

Not sure on this one Carrie but it sounds like a bug . Was it diarrhea or just a loose explosion . Going way back to my days as a carer with the elderly this could often be caused when they hadn't been going to the toilet properly and the bowel gets impacted which can also affect eating and cause irritability

Think ringing your gp might be the best

Lynda x

[Hidden in reply to dollydott]

Hi thank you. Gp was called out yesterday and he managed to ‘perform’ whilst doctor was here but slid back down in bed as soon as he had gone. No temp, blood pressure fine pulse fine, nothing to show in throat, lungs sounded clear. So I don’t know what is going on he has slept all day so far today I did wake him up to give him a drink but as soon as he handed cup back he was asleep again .

[dollydott in reply to Hidden]

Wonder if it was just a bug or virus and he just wants to sleep.

It's good that he's still drinking .

I would see what he is like tomorrow if no improvement speak to his gp or ask them to visit.

Lynda x

[doglington]

Is he passing urine ? I assume the GP checked for UTI ?

As long as he is taking liquids and passing urine I would wait and see.

My husband [ PSP] slept a lot. I used to get him up and into his recliner chair. He also had incontinence and bowel issues.

PSP I'm afraid.

x

[Hidden]

No not very much and not drinking either. Doctor coming out again tomorrow , he just seems to not be able to keep his eyes open .

[sasmock]

Hi, it's worth reminding the GP that people with PSP don't always show an increase in temperature during an infection, due to PSP's effects on the central nervous system. Make sure he does a dip test for a urine infection. Your hubby's symptoms sound exactly like my dad's when he had uti's. It's a constant guessing game with PSP and very often, you have to educate the medics, sadly

[Hidden in reply to sasmock]

Thank you sorry I am late replying to you but hubby has taken up a lot of time this week. I think we are about to start it all over again. Was better this morning but has been asleep since about 11.30 and can’t get liquids into him . Thank you again .

[PDDJED]

Sounds like he was constipated having cut down his fluids. Constipation can make you sick - ie vomit. With all that constipation maybe it built up to an explosion. My father regularly eats prunes and has prune juice to help with constipation and we also give him lots of fluids (using liquid thickener to help him with swallowing). Obviously get him checked by the doc though.