PSP Association
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John

My darling husband died this afternoon. He was in the hospice and although I desperately wanted him home he was in the best place as he had constant attention and the palliative drugs as needed. I’m so sad but glad he’s free of this vile disease. Thank you all for your huge support and fund of information. I pray this illness will be eradicated. John has donated his brain and I hope that will help. Vron xxx

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I'm sorry for the ache that goes with the death of a loved one, but happy for him and for you that he is no longer suffering.

The ache goes on, but fortunately with time, becomes less acute. JOY, that good memories bring, fills the pain of loss.

I so wished that I had donated my son's brain.....but forgive myself that both time and needs of PSP took it off my radar. Not to take away my part of the responsibility I do wish his neurologist(s) had mentioned it and provided some assistance on who to contact. Now I know the source is CurePSP.

It brings me comfort that you donated your husband's brain to research.

Blessings, Margarita (Los Angeles, CA, USA)

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Sincere condolences to you and

John's family and friends! Freedom has come for him and that is Great!! That is the biggest thing I hope for with my brother John!! Stay strong knowing now he is much better!!

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Dear Vron,

I am so sorry for your loss of John. I know you must feel overwhelming grief - even though you wished, as we all do for our beloveds, - a release from the chains of this disease. We will be thinking of you during this sorrowful time. Please stay in touch. 💖

Anne G

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Please accept my sincere condolences for your loss and deep gratitude for your altruism. Ruth x

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💗So sorry - wishing your family peace☀️

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I am so sorry Vron, at least he is not suffering anymore, bloody psp is the worst illness going. Sending you a massive hug and take one day at a time, because you can xxxxx Yvonne xxxx

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So so sorry to hear that john has passed away but he is in a better place now away from the all the horrible effects of PSP. Sending my love to you and your family as you start on the next step of this journey. Take time to grieve and be gentle on yourself Vron.

Big hugs

Kate xxxx

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Vron I am so sad for you. John is now free of PSP and in a better place. He seems to have had excellent care too so you did your best for him. Nobody can do more than that?

I am glad you were able to donate his brain too as every time someone does that it takes us nearer a cure?

God bless you and family Vron.

Marie x

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My sincere condolences Vron. I pray you will know His special peace at this difficult time.

XxxX

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Hi Vron, I am so sorry to hear that John has died. May he rest in peace, finally free from this evil disease.

Now is the time to look after yourself. There is only one way to deal with grief, that's your way, In your own time!

Sending big hug and much love

Lots of love

Anne

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Peace.

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I'm so sorry for the loss of your husband. I'm sending lots of hugs and prayers your way.

Gracie girl

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I am so sorry to hear about your husband. I send my deepest condolences to you. I am sure John appreciated all that you did for him. Take care in the days to come. Your gift to science and medicine is a wonderful legacy.

Wishing you peace,

Adrianna

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So sorry for your loss. In times like this I just close my eyes and think of the good times.

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Sending you much strength at this dark time. Look after yourself xx

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Dear Vron, my heartfelt condolences to you and your family.

You must be so proud of John re his brain donation for PSP.

Wishing you strength and healing, as you continue your journey.

Much love

Althea

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I am so sorry to read another has lost her husband to this foul disease. My sincere condolences to you. Jxx

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So sorry to hear of John’s death but relieved for you that he was in the right place to get all the care and support he needed.

Take care and be kind to yourself as you embark on this new post PSP journey.

Sending love and hugs

Tippy

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Dear Vron, I am so sorry you have lost your John. Mine continues to struggle against PSP. He too has decided to donate his brain for research, it's the only way to reach a definitive diagnosis which then can be tied up with all the horrible symptoms.

I wish you all the best in the next stage of your life. My love and best wishes go with you.

Rosemary x

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A big hug.

Luis

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Darling Vron I’m sending you my most sincerest condolences, you must be beside yourself, this all happened so quickly! If you need anything at all, call me, because we are so nearby. May John now rest in peace x

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So sad to hear of John's death. I wish for you the strength to cope with the days ahead. Look after yourself and take all the support you are offered. Warm regards.

Margaret

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Deepest sympathy to you Vron on the loss of John. Please take care of yourself xxx Ronnie

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Lots of hugs nd kisses to you at this awful time xxxxxx

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Sorry to hear.

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So sorry for your loss x

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Thank you all for your lovely responses. I pray for you all and that a cure will be found for this vile disease. Xxx

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I'm so sorry for your loss Vron. My dad died three weeks ago, and he was in hospice too. We wanted him to pass at home, but we now realise that we couldn't have managed without their expertise, so that does bring some comfort. The last few weeks have been surreal. Sending you strength for the days ahead. Sarah x

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We have to be strong and keep going. Xxx

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So sorry Vron. Look after yourself as best you can. xxx

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My heart goes out to you!Love and hugs and prayers.

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Sorry for you loss

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So very sorry for your loss xx

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My condolences, Vron.

I know how empty it feels.

A huge hug from Jean xxx

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So sorry for your loss but I am glad he is free of this horrible disease. Look after yourself xx

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Dear Vron. May John rest in peace. May you find solace in remembering the happy times and the love you had between you. Sending love and prayers for you both. Rx

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I am so sorry. Thinking of you.

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Sorry for your loss, hugs sent your way. The only way I'm getting through my loss is looking at 2018 as a new beginning for me. I know it'll will be hard, but we've been the best caregivers we could and now we need to start taking are of ourselves. One baby step at a time in between the tears.

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VronB,

I am so sorry for your loss. 2017 was so unkind to you and your family. I send my deepest condolences to you. Please take care of yourself. Your recent losses have been extraordinary. And good for you for donating John's brain. That is a smart and unselfish act.

Wishing you a much better 2018,

Warm Regards,

Dick

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Thank you. It’s very hard at the moment but I’m praying John’s brain will help beat this vile disease. His neurologist tells me that because they have so many scans etc his brain should be really helpful in tracking the progress of the degeneration. X

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