Dan has received an initial three day infusion treatment of high dose steroids. Mayo discovered he had a high amount of protein and immunoglobins in his brain. This is causing inflammation in the brain and treatment might give him some recovery. The first night he spoke about 10 words (more then he usually says all day). We were very hopeful. He is now back to few words and often just looks at me with a blank stare. We took him to church for Christmas , but it was truly a horrible struggle. Our heArts are all broken,. To see my children suffer is also is tough. Caring for him is difficult . We were using two people to help him take a few steps to get into a wheelchair, out if the car etc. Yesterday his feet were buckling. I have not cried as has everyone else. I feel I have become void of emotion. PSP has made life so hard that if I feel that once I gave into it I would be unable to do what is necessary to care for him.
May you are find peace and feel love and support this holiday season. Thank you for providing me with insight and motivation to keep going.