After being in hospital,- Palliative Care for weeks, B is now in a wonderful nursing home. Twice, he has struggled to keep going, once, my son and I stayed overnight, as we thought he would not survive until the morning. The care and nursing that he received pulled B. through.
He did want to come home at first and probably still does, but we know that at home , there is no way that he will get the instant response to his needs that he gets in the home. The nurses are mainly trained by our local Hospice. The doctor whose practice the home uses, is an expert in palliative care and used to work at the Hospice. I spend hours each day with my husband and he has a lot of visitors. More, I feel, than he would get at home, as people can pop in to the home because it is nearer to the centre of townsite.
If I bring B. home and we cannot get such high quality care, I may not be able to get him back into the nursing home.
Its a nightmare. I feel guilty, thinking I cannot carry on as I was before, because of my own physical problems and the fact that it is not easy to get good quality caring and nursing at home.
The Home that B. is in is superb. His pain and many needs are managed well. The staff are friendly and caring.
My only worry is , am I doing the right thing keeping him there instead of him being at home, when we do not know how long he has left?