Like most people my wife has been told she has PSP having originally being told it was PD. My wife gets a lot of discomfort in her mouth, dry mouth pins and needles and tingling her jaw feeling tight and numbness . I was wondering if anyone has had similar problems ?
Billy
Featured Content
Jump to repliesHi Billy no my husband does not suffer with any of that. Sorry someone else may be able to help. Merry Christmas Yvonne x
My mum has a very dry mouth as she is not able to close it anymore. We use water drops and artificial saliva (spray or gel) to moisten the mouth. We have to be very careful with the quantity because mum is not able to swallow anymore and it can cause more problems of choking. Please be careful, it depends on how your wife's swallowing is. Hope this helps.
My wife a week or so ago said she had some pain in her left jaw/ mouth side . I saw NO inflammation, sores or source of discomfort visibly....After a couple days contacted neurologist ...He said it was not that uncommon to see dystonia in the jaw area with PSP.My wife is in her 5-6th yr with this horrible debilitating disease and now just 1 more way this disease can further make her life a living hell . Anyone else had this sort of event ?? EVERTONIAN.... its not exactly the same but sounds related ...
Have not experienced this - yet, watching this post in case its something that comes up in the future.
Thanks for the replies my wife was diagnosed with PD May 2014 and diagnosed with PSP December 2017. She is seeing a Maxillofacial consultant who gave her a spray and lozenges for her mouth that don't really help. Chewing gum and fruit pastilles help to stop her mouth stiffening up and getting dry.She see the consultant again next week
Thanks again ....Billy
Cannot open mouth
Not opening mouth for food.
Dry throat and mouth
Great difficulties to open the mouth.
Botox 
