Botox for neck

[Babowen898]

Hi, has anyone had Botox in the neck to help hold neck upright? My hubby’s neck is bent down, and this causes his shoulders and back to lean forward. Would Botox help him stand straighter?

[easterncedar]

No botox, but had really good luck early in the progression with chiropractic treatment for a bent neck and pinched nerves.

[Karynleitner in reply to easterncedar]

Was that early in the disease, or accompanied by other rigidity.

[easterncedar in reply to Karynleitner]

It was early in the disease, while he was still getting about pretty well. His neck was bent far forward and down and he had developed a large bony knot in his vertebrae at the base of his neck, and he often complained about shooting numbness and pain in one arm and shoulder. It was to treat that pain that he was sent to the chiropractor. I was amazed how his neck straightened and the knot went away after a short course of treatment. His posture was largely corrected at that point, and it never got as bad again.

[ketchupman]

Seems to be a common characteristic of people with people with atypical Parkinson (PSP, CBD, MSA, LBD). I lead a support group here in KY (USA) with people who have a variety of these diseases. It looks very uncomfortable to us, but supposedly the patient doesn't mind so much. I had asked our doctors if using some form of a neck brace or cervical collar would be wise, but they were against it. For my wife, her head would hang more while seated in her wheelchair. But for most of the time, we were at home and she was either in her adjustable bed or her reclining lift chair. So I could keep it in a position where her head wouldn't hang down so much. To be brutally honest .... This seems to be displayed more obvious in patients in about their last couple of years with the disease. And in their final months, their chin almost touches their chest and they have a horrific time keeping their head up. As for Botox to the neck, I have heard of patients getting it there, but don't know of anyone personally who has and what the results might be. My wife got Botox around the eyes on 4 occasions, in order to help keep the eyelids open. The last treatment was too excessive and she had difficulty closing her eyes. She was like a hoot owl for weeks.

Ketchupman

[Pentland]

We are heading for an appt with the consultant to see if my husband is suitable for botox to help the rigidity in his arms. His head also sits forward and his chin rests on his chest. I have no idea if botox would help this but it is always worth asking the question. We have a physiotherapist occasionally and her manipulation brings only very temporary relief. Good luck

Margaret

[CarerKen]

My wife has had botox injections to relieve rigidity in her arms and neck - she couldn't move her head from side to side. Subsequently her head has "fallen " forward with her chin almost on her chest. We see the consultant next week and shall ask whether this can be rectified.

[Finoni]

I wonder if a 'trtl pillow' would work. They are very comfortable and the support can be moved to wherever necessary. Google it and see what you think.