Eyes

[richmond1]

Hi all sorry wrote anything for a while but I have read the posts daily xx I’m looking for advice just when you think psp can’t throw anything else at us mums eyes are closing regularly to the point that every 30 mins we’re having to prize them open they are so tightly closed, we’ve tried every eyedrop possible. Mum was seen by the neurologist and said unfortunately it’s part of psp and mums eyes could eventually close permanently, they spoke to her about Botox but said the success rate was low and it could cause her eyes to permanently stay open. All mums got for enjoyment is watching tv and it looks like shitty psp will take that away from her, it’s already took her speech mobility and dignity I hate it so much. I was wondering if anybody had experience of eyes shutting permanently, I’m just trying to prepare us of it. Thankyou all and sending much love xxxx

[easterncedar]

Sorry about your mother's troubles. It's a hard situation. My guy was bothered greatly at one point by his eyes involuntarily closing, but it didn't progress and it ceased to worry him much. Botox was scheduled, but he had a bad fall, missed the appointment, and was never rescheduled. Someone here recently asked about Lundy loops, which are used to prop open the eyelids. I found the address for the maker online. There is also the possibility of having springs installed in the eyelids, which is done for people with facial paralysis. I think it may have been Peterjones, our late correspondent from Queensland, who said he would pry his eyes open and then massage his face around them, and that helped them stay open. I hope you find something that helps.

Love, ec

[Robbo1]

Sorry to hear this. B has the other problem, eyes staying open, even when asleep.

Someone I know has a husband who has PSP. He has Botox for his eyes and she said that it works for him. Maybe it's worth a try. Good luck! X

[richmond1 in reply to Robbo1]

Sorry to hear B’s problems with his eyes I can’t think which is worse eyes open or closed, it must be more painful them being open xxhugs

[JantheNana]

My late husband had this problem with eyes closing involuntarily.If it happened while walking he would have to stop and open them with his fingers.He got Botox injections every 3 months and they helped a little but not much.

[enzo501]

Botox works in our situation..My wife has an injection every 90 days ..and within 90 minutes the eye looks very good ...at around the 75 to 80 day mark it starts to get lazy as we call it ...Our Neuro administers it and because it is NOT cosmetic it is really reasonable ...We are in Denver area....hope you have the opportunity to try it and I hope it works ...jeff

[richmond1]

Thankyou Jeff