Hi all I was wondering if you/your loved one complained about weakness?
And when they were not mobile anymore was it because of balance or losing the strength to be able to walk?
As many of you that have replied to my previous posts I was dxed YOPD in March 2016 but the symptoms are coming think and fast atm I am unable to use my right hand/arm my right foot is affected and it seems like my left arm is getting weaker.
I am finding that my only mobile arm is feeling weak especially at the top doing simple tasks like pressing the tv remote, typing etc... Also I am unable to turn in bed due to this, I can walk (in a fashion) but can't move my right leg in bed when I am not medicated meaning I am stuck in one position all night... Also I can't get in and out of bed when the meds are off my partner has to put me in bed get me out... Can do all these when medicated if/when it kicks in.
The Stalevo (Sinemet) I am on is great when/if it kicks in, but only seems to last 2 hrs then I have to wait till my next dose and the cycle goes on.
Just wondering how the symptoms progressed? And how fast? And how did it eventually affect there mobility?