Hi there -
My mother was diagnosed with PSP two years ago. She has gradually declined in many ways - dizziness and falling, coughing, disorientation, tiredness etc.
She's developed a terrible cough recently and I've never heard anyone wheezing as badly as she does. The doctor has given her a nebulizer (does anyone know how effective this is?!) and I'm very worried that her cough will just continue to worsen, with the possibility of the onset of pneumonia.
The whole grieving process for myself (I'm her eldest son), her husband (my father) and her other children is very difficult. I get depressed about it all a lot. Although I don't think I'm clinical or anything, it's so awful. Does anyone else suffer from that?
Thanks for listening.