PSP Association
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MINDFULLNESS

Hi guys, this is for POST PSP & PSP.

As anyone tried Mindfullness? I have been going for a couple of months now. It's a meditation class. Don't know if it's doing any good, overall, but for the one hour a week, I am totally relaxed, which I am sure you will all agree, is fabulous.

I have thought during the sessions, why didn't I get Steve to this. Today it really hit home. This would have done him a power of good. Mentally, like so many others, Steve was completely up together, until the end. For him to be able to relax, do something positive mentally, would have been brilliant. I know the woman I go to,does home visits, if you can't get out, so I expect others do as well. It's something you can do together, both getting an hours relaxation. How wonderful does that sound????

Also, for us Post PSP, it clears the mind, relaxs you, make you feel calmer, more able to face the day. Gets you out, something to look forward to. Be it, just an hour a week, it's one less to worry about! You never know, you might be able to practice it at home and get some serious benefit. I'm still learning, hopefully that day will come.

Just a thought....

Lots of love

Anne

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Hi Anne, I'm so pleased you have found a good way to relax. Mindfulness is another group run by our village U3A. Several of my friends joined the sessions and felt like you do, completely relaxed. One even fell asleep apparently. It's important we all find our own way to relax and help us face whatever we have to.

Lots of love

Bev

XxxX

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Hi Anne I am totally with you.

Caring is so distracting. Multitasking is very bad for the mind and tires the brain much more quickly than moving ones focus from task to task. I regularly end up absolutely ragged.

When I do remind myself to be 'mindful' and take a few moments to just breath mindfully the world settles and I have calm blue skies open up in my mind.

Thank you so much for posting on this... I am a bit of a slob with it and the prompt is very needed.

Waiving warmly

Kevin

XX

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Brilliant suggestion, Anne. Thanks. Ec

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My sister went through a lot of emotional turmoil due to a mental illness of her son. She took up Mindfulness and now swears by it, she says it takes practice but she draws on it in all avenues of her life now. I have just started a beginners yoga class and this weeks task is to make a hot drink, sit down and don't move until it's all gone, reminded me that most of my drinks are consumed 'on the hoof' and only half drank and the rest left to go cold. It's good to be reminded to slow down a bit at some point in the day and put yourself first for a short time every day. Sound advise and I'm going to try to stick to it. Xxx

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Katie I am another drinker of cold drinks! My Granddaughter asks me how I can drink cold tea or coffee. A hot drink would be better but I can drink them cold now! I always seem to be distracted by something! So maybe sitting down and quietly having a drink once or twice a day would do me good? I will try it!

Marie x

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Anne thanks for that. I have no idea if there are Mindfullness classes near me but I will search. I have two Mindfulness books but have I read them? What do you think? It's very odd but although I love reading I haven't read a thing since G died!

Marie x

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Marie_14

Re access to Mindfullness. Read my reply to Heady I've been told minfullness books are OK but there is nothing like someone talking you through a session as is readily available on UTube

Ivan

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Thanks for your replies. My main point is - our loved ones, would it help them? Of course I know it will help Carers, but what about the sufferers of PSP?

I am convinced it would calm them down, or perk up the ones that need it.

Lots of love

Anne

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Chris and I have both done meditation in the past. We also found similar benefits watching the sea or lakes. Something about water - -

I am actually good at doing nothing and I've always been a " dreamer ". Its making myself do things like sorting out thats a no no.

love, Jean

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Sorry, have I missed something? Are you meant to get up and sort things? No wonder I feel out of control, thought paperwork just needed to be chucked into the filing tray and that was it, job done!

Lots of love

Anne

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A woman after my own heart !!! Actually it worries others more than me. I actually do all essential things. I did get P.O.A. eventually. But last minute.

I write lists and feel I've done something - its written down !

love, Jean x

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Me too, I thought the filing fairy did that sort of thing. My job is jamming to up the shredder...Brenda

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Oh Brenda, me too! Me too,

Lots of love

Anne

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Or even the bin Anne. I have three bags full of unfixed paperwork, no idea whats in there. I only deal with priority mail and leave the rest to rot. xxx

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I have boxes to sort. I figure we've survived without whatever is in them so they could just go !

Priorities change - - -

xxx

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Myself and Mum have meditated for a few years, before CbD and also since diagnosis. We did to help relieve stress and anxiety.

Mum can no longer meditate as her brain doesn't allow her to anymore but I play relaxtion, meditative music all night for her. I put it on when she is settled in bed for sleep after carers gone and then leave it playing all night. It helps relax her and if she wakes , well not if, when she wakes during the night she doesn't get as anxious and it helps her sometimes drift off again. I use you tube , they have tracks on there that are 8+ hours long.

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I NEED to find a group, urgently! Thanks Anne x

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Youtube has guided meditations - I've not tryed them. I do go to Yoga once a week and have an excellent instructor that gets us to separate from our daily grind. We also try to watch a movie once in a while. Great relaxing for us. I sure would love to have someone come to the house - yum.

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It's not the answer, but..... One hour of relaxation, beat that PSP!!!!!!!!!!!!!!

Lots of love

Anne

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Hi Anne, I will look and see if there is a class near us. Not sure if W will go as he thinks meditation is for 'hippies' but I would certainly like to. Glad you are getting enjoyment from it. Lots of love Nanny857 x

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Hi Heady

I have used Mindfulness audio tracks for many years now. The trick I have found is to preview the voice narrating before buying if it grates on you doesn't matter how good the content!!! Audible have good selection.

It works well at calming (me and) my hubby down when he has us agitated at night I have 10, 20 and 30 min tracks depending on the situation. He will not listen in the daytime though.

I do find Mindfulness is just a little piece in my coping armour against PSP. Not that I am in a zen state of calmness most of the time!!!

Love Tippy

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Heady

I went to a 'taster mindfulness session' about one month ago and have been doing it nightly since. Go to UTube, put in mindfullnes, or some othe request mentioning mindfullness and you will get a large choice of sessions of varying lengths choose one that suits the time you have available. Some sessions explain the value and advantages of Mindfullness. I take some of these with a pinch of salt. However, by trying different sites I now have favourites which I look forward to doing. Good luck and enjoy the deep relaxation.

Ivan

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Ivan

I never thought of U Tube!! Will try it and see what I find.

Marie x

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Marie

You are very welcome.

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I downloaded a meditation app about a year ago called Calm. They also have a website. The free version has lots of different meditations of different durations and levels of guidance. They even have sleep stories to help you sleep,or just different sceneries and nature sounds. It's been helpful when I had a few spare minutes and needed to zone out for a little while. The paid for version has loads of bells and whistles, but I'm a bit of a cheapskate 😊

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I've been using the app "headspace" and really like it. I tried 3-4 others before deciding on this one. Of course, I never thought of the YouTube route. Doh! I do it in the morning before I wake mom (& after my kids are at school) and in bathtub or bed - believe it or not - at end of day. Other than the gym, it's the only "me" thing I have, so it helps me feel less consumed. And with any luck, reduces stress/anger.

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I have been doing it for the last couple of months and it helps me relax not sure it is helping the PSP. But there is no treatment and at least doing I am doing something. The side effects are minimal. So give it a try. There’s no harm in trying and if you get a little benefit that would be great. It is not the be-all and end-all. My neurologist recommended it. brownmdj

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That's interesting, that your neurologist recommended it. Glad it's helping you relax, that's bound to give you some benefits.

Lots of love

Anne

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