Finally I have the letter telling us the Panel`s decision to withdraw CHC.
I have just ploughed through the DST and the Panel`s notes, but the letter with them includes the following quote ...
"It is recognised that many people consider that the need to have carers should be enough to indicate they are eligible for the NHS Continuing Healthcare, especially when 24 hour care is required. However funding arrangements are currently laid down by the Government and there is no automatic entitlement to full funding by the NHS unless the NHS Continuing Healthcare criteria is met."
My mind is still spinning (and probably will be for some time) after reading all the paperwork. I am seeing my MP next week, so I have a few days to clear my mind and present my case.
I feel cheated that my time is being spent on this when P should be getting my full attention. His choking is getting much worse this week and his drinks are now of custard consistency. The GP tried to prescribe Mucodyne (?) but P was unable to swallow it so we are now going to try a patch.
The panel for CHC concluded that there was NO complexity OR intensity OR unpredictability to P`s illness - words fail me !