My mom has PSP stage 4, with peg installed nov 2016. Last Wednesday she was hospitalized with aspirated pneumonia. They ventilated her and removed some food we think might have been from pleasure feeds no more than 6 -1/2 teaspoons, stop if she chokes. The Tuesday before she had labored breathing and mustard up the word "Cold". On a pain scale of 1-10 she indicated 4, we communicate almost completely by finger movement. Why I say this, I can't keep thinking she had a two fold problem with a cold, producing excess mucus.
Now the pulmonologist suggests tracheotomy installed to ease breathing, and suction of the mucus. She has been on the patch since Friday , added a second pill in conjunction to minimize the mucus but still needs suction.
Mom has agreed to the tracheotomy, we have consented as they indicated it will ease her breathing, cutting the distance in half for air into the lungs, bypassing the mouth. They also say 90% plus will be suctioned from the trachea not having to do the Deep Throat suction as much.
Has anyone experienced this or heard of this being used to help living with this disease?