I follow this community and am very impressed by the support you all give to each other. It inspired me to push for a community especially for Multiple Systems Atrophy (MSA) a condition my wife was dx with a couple of years ago.
Your community is larger and I wonder if anyone can help? Jax has just this week been fitted with a PEG and it seems sensible to have a strap or belt to protect it when wearing loose or no clothes. I have seen these on US web sites but nothing in the UK. Neither Nutricia who have given the training etc nor the PEG manufacturer are able to help.
Have we missed something or is this a need in the market yet to be met?
Best wishes to everyone, the support you give each other is truly inspirational. Ian