Breathing issues and shutting down

Charles is having severe breathing issues. Morphine at night and so tired. Too tired to eat as well. Shutting down and I'm terrified. I want to be with him and don't know when it will end. I still have to get things ready but I'll never be ready.

Any advice or experience with this would help, dear PSP carers and sufferers.



12 Replies

  • Hold him tight.

    Julie x

  • Keep telling him you love him

    Hugs to you 💕🤗

  • Stay with him, cuddle him and tell him you love him, that's all I can think of, there are no other answers sadly, I can't believe that this is happening to so many of us at similar times! I'm thinking of you, try to stay strong for his sake and your own....

    Sending you both my love.... pat xx

  • There is nothing to get ready sweetheart. Just do as everyone has said and tell him every minute that you love him and cuddle him too.

    Nothing else matters now. He needs you more than he ever has so just keep telling yourself that. No need to be frightened. It sounds like he will go peacefully. All any of us can ask for?

    We are all here for you now and in the future. We are all useless when it's over because we don't know what to do with ourselves.

    Right now that is not a problem. Just hold him close and love him. You will be forever grateful that you did.

    Marie x




  • I agree with Marie, there is nothing to do at this stage. Just hold him tight and tell him you love him and everything will be OK. Give him permission to leave you and reassure him that you will survive. Because you will. Everyone of us that has cared for a loved one with PSP, is a survivor. We are all very strong people, we have got a loved one through the hardest part of their lives. No mean feat.

    Sending big hug and much love

    Lots of love


  • Just be there for him, I'm sure that is what everyone would want as life is nearing its end, I know that being alone as I leave this world is the one thing that scares me and hope that I have someone to hold my hand and reassure me.

    Sending you both my love and support.

    Kate xxx

  • I know how you feel. He is sleeping well now and the breathing issue has subsided for now but Hospice pushes the morphine though he doesn't have any pain. I'm confused.

    Thank you for letting me know and everyone else who said hold him and say I love him over and over and over.

  • Hi Cuttercat, as his time approaches do something I did not do enough of, give him hugs and kisses as much as you can hold him when you can. You can never prepare for the actual moment or the following days.

    The hospice are only able to make him pain free you need the emotional support he provides through touch, you are going to miss that soon enough.

    You will be strong enough when his PSP path is completed, do not worry about the future live for today with him.

    Best wishes Tim

  • Continuing to pray for Charles, and for you.

  • Wow, sorry to hear this. Nothing really that you can do at this point other than be there with him as you have been. I know you're not ready but it sounds like he is. Just let him know that you love him and that it's OK and that you'll be OK so that he can find comfort in that. Your PSP support system is here for you as always. If you have family or friends that are not there, you can call them and put the phone to his ear or on speakerphone so they can talk to him. When my dad was dying they said he could still hear everything so we talked to him and played a video of his new great granddaughter with the hiccups, just so he could hear the baby noises since she was so far away and he was not able to see her in person. I like to think it helps. Lots of love and hugs to you.

  • Yes yes all of the above!!!!! Just hold him as best you can. Touch him always. Tell him you love him. Stroke his face and brow. Hold his hand always. The Lord will do the rest. Many many prayers.

    God bless


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