PSP Association
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George

Well today started off ok, but this afternoon George was lifting himself nearly out of the chair in terrible pain, just like the pain he had a couple of weeks ago, when he went into hospital, I thought here we go again, phoned up GP they sent doctor out, she wanted to phone for an ambulance and send George to hospital, could not believe it, told her I did not think his catheter was draining? She said after a while ok I will get the DN out to change his catheter, beyond me why doctor could not do it? DN came changed the catheter, as soon as she changed it George was fine, so happy 😊 we did not need to go to the hospital. we had to change all the bed, and his clothes, he was sweating soon much with the pain. Managed to feed him some soup, had his medication and he is sleeping. From 3 o'clock until 7 o'clock he was in really bad pain, beyond me why the doctor could not off just changed the catheter and not put him through more pain. I am going to bed hopefully will get some 😴 sleep. Love to you all it has been very quiet lately. Big hugs Yvonne xxxx

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Yvonne, that really stinks. Poor George. I sometimes wonder if they know what they are going. I am still going nuts without Don, it hurts so much. Love back and big hugs.

Audrey xoxo

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Audrey I have been thinking about you, time is a good healer, everything is so raw, keep strong, grieve in your own way, we are all thinking of you, sending you a big hug. George is asleep peace and quiet here after the afternoon we had xxxxx

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Yvonne, I can't stop talking to him and crying. I am going nuts without him :(

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Audrey it is very soon after Don passed away, you are grieving lovely lady, Don would want you to be okay, PSP is a s**t illness. Sending you a 🤗 xxxxx

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Yvonne, Yes grieving, I would give anything to have him back. Yes, PSP is a horrible illness but I would give anything to have him back caring for him. Sending back hugs and xoxoxo.

Audrey

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Sorry Audrey been so busy, George has been unwell again, sending you a big hug, I can feel your pain xxxxx

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Yvonne so sorry that George is unwell again. I feel so badly for you. Sending a big hug back to you and hoping he has a turn for the better. Thank you for your kind words. xoxoxo Audrey

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It's awful seeing someone helplessly in pain. I hope you are getting some sleep, Yvonne, and George stays more comfortable. Love, ec

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We had a good night all ok our end, hope you are ok xxxx

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That must be very scary Yvonne and you do wonder why docs can't do these things but maybe best the DN does it as she is well practiced in the art. Bet you were both shattered after the ordeal fingers crossed for a quieter time for you both.

Love and hugs

Kate xxx

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Thank you Kate, yes DN was great, we had a really good night x.

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Dear Yvonne I equally have no idea why this stupid gp couldn't do the catheter and in fact why he wanted a hospital visit?! Sounds like another shit GP to me! I'm pleased though that the problem was eventually sorted but very sorry that George had to go through this! Can't imagine it did your stress levels any good either?! Hugs x

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Thank you Amanda George is much better today xxxx

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Oh poor George I hope things are better for him now. My best friend's husband has the same problem and they have been given a phone number to ring and a DN comes out straight away. I hope they have given you a number too. Take care

Love Tillyhugs xx

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Will ask DN today when she comes to do George's bloods xxxx

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What an awful experience for you both.

Can you call DN directly next time ? Just shows who knows best for our loved ones.

Hug from Jean x

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Thank you Jean DN is the best xxxx

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Hi Yvonne, it's not really a surprise that the GP was incapable of changing a Catether. I think the only thing they know how to do, is phone for an ambulance. Certainly wouldn't have wanted Steve's GP anywhere near his Catether. Have you not got the DN's direct number? I would just keep phoning them now, or Rapid Response, if they operate in your area. They will always call out a doctor or get George into hospital if it's something else. In my experience doctors always start from the most serious thing that could be wrong, whilst a nurse starts at the most obvious and simplest cause, which 9/10 is the correct one.

My heart goes out to you Yvonne. Sending all the cuddles I can and much love with them.

Lots of love

Anne

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Thank you Ann I told the doctor I could ring DN she said no I will do it. Really fed up with PSP and hospitals. Ann I hope you are doing ok a big hug back to you xxxx

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How horrible for you both. I agree Dr should have changed it but in today's world each person has their job and no one does what isn't their job even though it would be faster and better for the patient. It's a shame. Glad it's resolved and he's feeling better though. Hope you both got some sleep. Hugs

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Good thing he has you in his conner.Hope you both had a good sleep.

Dee

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Yes he did, but I was awake half the night xxxxx

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Hi Yvonne, sorry such a terrible time, just hate to see anyone in pain hopefully that will ease off and he will be ok, was that the same pain George had a couple weeks ago? Nettie

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Yes exactly the same pain, he is much better today, still agitated in the afternoon, but was shattered tonight, he couldn't wait to get into bed xxxxx

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Sorry to hear you had another ordeal to handle Yvonne, but glad George got sorted eventually and relieved of his pain. Love to you both, nanny857 xx

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Seems like we have been through so much, let's hope things get better xxxx

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I AGGREE WIHT WHAT HAS BEEN SAID

LOL JILL

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