Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for February 2017

Portapotty nightmare.

Good morning everyone, need some suggestions on a major problem having with my brother, to start he was having problems staying put on the pot so finally got...

Good morning everyone, need some suggestions on a major problem having with my b...

•7 years ago

A taste of Spring

Just a taste of Spring in a Devon lane - the snowdrops area abundant this year - wherever you look there are snowdrops and more snowdrops .

Just a taste of Spring in a Devon lane - the snowdrops area abundant this yea...

•7 years ago

After PSP

This is 10 years after PSP

This is 10 years after PSP

•7 years ago

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Before and After PSP

This is before PSP

This is before PSP

•7 years ago

Stomach pain

Hi everyone Just a query for those with a loved one with CBD. My husband complained of stomach ache as we were on our way to his annual neurologist appt. It...

Hi everyone Just a query for those with a loved one with CBD. My husband complai...

•7 years ago

Twilight times

Hi folks. Just an update from here, or a sharing of pain. Things are good in many ways - great bonkers Bulgarian care agency - Its like herding cats with the...

Hi folks. Just an update from here, or a sharing of pain. Things are good in man...

•7 years ago

PSP charity event

10th May. My daughter is trying to organise an event at her salon, and would appreciate any guidance for this event

10th May. My daughter is trying to organise an event at her salon, and would app...

•7 years ago

Well I was right

Yep they ran out of gas cops called the other night about 2 am and said they found my truck and they got about as far as I thought 6 miles LOL it was on the...

Yep they ran out of gas cops called the other night about 2 am and said they fou...

•7 years ago

psp and seizures

hi I look after a lady with PSP and she has started having these mini seizures they only last a minute or 2 but she shakes then when she comes round she...

hi I look after a lady with PSP and she has started having these mini seizures ...

•7 years ago

My mum has her wings

It is with deep sadness but relief she is no longer in pain that I have to type this post to say at 9.30am Saturday February 18th 2017 my mum took her last...

It is with deep sadness but relief she is no longer in pain that I have to type ...

•7 years ago

The view from my bedroom!

Hi, last day in the French Alps. Did have one lesson, yes with the most gorgeous tall, dark and handsome French instructor!!! To frightened of hurting myself...

Hi, last day in the French Alps. Did have one lesson, yes with the most gorgeous...

•7 years ago

Lost my Dad

Hi everyone A couple of weeks ago I posted saying I thought we were reaching the end of my wonderful Dad's life - I was right. Dad died at 9:55pm on 14th...

Hi everyone A couple of weeks ago I posted saying I thought we were reaching th...

•7 years ago

Peg or not?

Hi I am having to make the truly awful decision of whether to peg feed or not my lovely Mother? She has signed DNR but i have to face this decision. How can a...

Hi I am having to make the truly awful decision of whether to peg feed or not my...

•7 years ago

Waiting for my mum to get her angel wings

My mum was diagnosed with psp oct 2015 and it's been a fast downward spiral of a journey since - she was admitted to our local hospice 2weeks ago for an...

My mum was diagnosed with psp oct 2015 and it's been a fast downward spiral of a...

•7 years ago

New PSPA Information Sheet

Are you aware that anyone can leave a lasting impact on PSP and CBD research through brain donation – healthy brains are needed too! Read our new Brain...

Are you aware that anyone can leave a lasting impact on PSP and CBD research thr...

PSPA•7 years ago

Feeling Numb

Feeling numb and guilty. When will this every end? Overwhelming and going through the motions. Charles gets tired and grouchy in the evening but only with...

Feeling numb and guilty. When will this every end? Overwhelming and going thro...

•7 years ago

Hi, I'm new here - fulltime carer for my Dad who has PSP

My name is Kerryn, and along with my husband, we care for my Dad in our home near Boonah in South East Queensland, Australia. Dad was diagnosed with...

My name is Kerryn, and along with my husband, we care for my Dad in our home nea...

•7 years ago

Angels Do Have Wings to Fly!

It is with a sad and heavy heart that I write to you tonight. On Saturday, Feb 11th, Guy lost his battle with Corticobasal Degeneration. It was a...

It is with a sad and heavy heart that I write to you tonight. On Satur...

•7 years ago

Article in US Cosmopolitan about 32 year old caregiver

"I Became My Father's Parent at 32" http://www.cosmopolitan.com/lifestyle/a8629687/millennial-becoming-your-parents-caregiver-young/ as posted by CurePSP.

"I Became My Father's Parent at 32" http://www.cosmopolitan.com/lifestyle/a86296...

•7 years ago

Hello I'm new!

Hello all. My husband was diagnosed with PSP in May 2016. He's 66, we have just seen Dr H Morris in Queens square, London UK and he thinks he is in the early...

Hello all. My husband was diagnosed with PSP in May 2016. He's 66, we have just ...

•7 years ago

Mattress topper for a cooler sleep

Does any one no of a good mattress topper in the Uk to help keep my hubby cooler on a hospital mattress as I know they do make one very hot and I also think...

Does any one no of a good mattress topper in the Uk to help keep my hubby coole...

•7 years ago

Memories

Hi all. I have just come back from having the best time with my dad. My dad has been quite poorly the last few days and when I went to visit dad at his...

Hi all. I have just come back from having the best time with my dad. My dad has...

•7 years ago

Involuntary eye closing

Does anyone have any experience with Botox injections for involuntary closing of the eye? My guy now has to hold his eyelid open to watch tv. Searching for a...

Does anyone have any experience with Botox injections for involuntary closing of...

•7 years ago

The Next Step

After months of my mother in law being in the home, the family has come to the realization that she will not be coming out. We are moving all her belongings...

After months of my mother in law being in the home, the family has come to the r...

•7 years ago

PSP Research & Trials UK

We are thrilled to announce a major investment by the Medical Research Council in PSP Research. They have committed to over £600,000 for a new UK study that...

We are thrilled to announce a major investment by the Medical Research Council i...

•7 years ago

Seizures with CBD

Hello all This morning Mum had some sort of fit and we have been in A&E since 7.30am. No one has heard of CBD, no shock. They do think it is a seizure though...

Hello all This morning Mum had some sort of fit and we have been in A&E since 7....

•7 years ago

Keep in touch

Hi. We live near NYC. Please read my posts. Let's communicate....regards....

Hi. We live near NYC. Please read my posts. Let's communicate....regards....

•7 years ago

sleeping and dreaming better than life, I am depressed on meds

I now have a hard time to get out of bed and am taking too much prescribed and over the counter meds. Need more all the time. I also am turned around, sleeping...

I now have a hard time to get out of bed and am taking too much prescribed and o...

•7 years ago

Irritated and watering eyes - Help

Hi folks Liz has irritated eyes and they are watering quite a lot now. Has anyone got experience of this? Any treatment which has helped. We see the GP in a...

Hi folks Liz has irritated eyes and they are watering quite a lot now. Has anyo...

•7 years ago

Delayed psp diagnosis

Hi my name is joe. My dad was diagnosed with psp 8 years into his condition . He is still with us but is in really bad shape. Based on my research of psp I now...

Hi my name is joe. My dad was diagnosed with psp 8 years into his condition . He...

•7 years ago

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