PSP Association
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Waiting for my mum to get her angel wings

My mum was diagnosed with psp oct 2015 and it's been a fast downward spiral of a journey since - she was admitted to our local hospice 2weeks ago for an assessment and will not return home - I have sat with her since 3am 16thfeb watching every single breath she takes waiting for it to be her last and her journey to come to an end with this cruel devistating illness :(

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I hate it that PSP/CBD even takes the ability to communicate, I am sure that in the past few weeks there was so much you wanted to hear from your mum. Stories from her, memories you both could laugh and cry about. Just kowing that you could say I love you and hear it back.

I cannot think about the day my mum leaves me, until then I will try to listen to every word, tell her everything I want to say and say I love you a million times...

Sending you love and strength

Hugs

Paola

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Dear Sophiejo

Sending you much love and strength

I'm very sorry to read this news x

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I am so sorry Sophie we are with you and giving you a great big hug that goes on and on xx

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Oh Sophie, I'm so sorry. Sending prayers and warm thoughts.

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Sophiejo, I am sure each minute seems like hours, yet like a single second. You are devastated for her to leave you, yet you want her free of this cruel disease. May God be with both of you during these trying and stressful days. Our prayer are with you.

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Thinking of you, Sophie. Its a devastating time for you all.

love, Jean x

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I sort of am doing that too. Though Bruce is very healthy, his breathing is very shallow and rapid. normal breaths per minute is 12 . B's is 28-36. I wake up in the morning looking for body movement since his breath is so shallow....and skin is usually pretty cool....

i hope you are ready for your mum to leave this world. I think I am I don't know . But I do know that the Lord will have him when he does go....

((supportinghugs))

AVB

“For He will command His angels concerning you to guard you in all your ways. On their hands they will bear you up, lest you strike your foot against a stone.” -Psalm 91:11-12

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Sending you love & strength during this painful process.

Your Mum will know you are there beside her.

Please look after yourself too.

Massive hugs

Xx

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Thinking of you and do hope your Mum had a very peaceful journey. I have to believe that the next journey will be without the cruelty of this disease .

Take care of yourself.

Dee in BC

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Sophiejo

I imagine that sitting with her is so important for her.

Heart wrenching for you.

I hope she has a peaceful parting with you close by.

Warmly

Kevin

x

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Sending love and strength your way 💙

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Sophie

I know exactly what you are going through. My husband is dying too. He went into hospital on 1st February. I am amazed he is still with us but he was always a fighter. So we go on. He is in hospital unfortunately and he wanted to die in the hospice. However he is being kept comfortable. I am so tired it's not real.

Take care of yourself Sophie. Thinking of you.

Marie x

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Sending my love to you as your mum is slipping away, I hope she is kept comfortable and painfree. xx

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