Been a whole week juggling work hospital visits and home trying to sleep. runing backwards and forwards to the hospital to see mum for few hours after work each day
Mum choked on some food which went into the lung this then got infected and became pneumonia. She picked up in the week and the hospital started talking about liquid feeding at home. Thinking how can we cope at home with this challenge mum loves her food and tea with out the thickener. Have to be strict i said.
Then mum went for a turn and we were back to square one again.
the pneumonia had got worse and mum became unresponsive to the treatment all they could do was make her comfortable.
This morning we got that call from the hospital that no one likes to have telling us to come as soon as we can. A few hours after sitting at her bed by her side she slipped away quietly now to try to adapt to life with out her being around.
The house feels so empty with out her here just the tick of that clock on the wall seems to be filling the emptiness. Where do i start after ive finished crying and giving...
A poem i wrote a few months back ...
A quiet attack on the brain
Quietly taking life away disappearing like a train
Taking each an every cell in existence
Therefore needing more and more assistance
With each passing year
It slowly becomes more clear
Not so quiet anymore
But big and loud like a lions roar
You are still who you are
A Nan, a Mum, a Wife
It will never change who you are in my life
Love is still in it place
We can see it on your face
You the suffer and the ones who care
The struggles, the good times are ones we share
Sometimes we cry and shout or say this is unfair
But we still carryon and will always care
Some days are good these days are great
Some days are bad these days we hate
Friends and family are there for you
Some one you can tell stories to
The PSP Association is there for you
Providing help and support and research too
Poem by Luke Potgieter
My lovely husband Paul passed away last night at 9:35pm
Any advice on sleeping flat or at an angle please
mum was told august this year she has psp
