My father is now at peace from PSP - PSP Association

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My father is now at peace from PSP

Mimram profile image
16 Replies

My father was diagnosed in August 2016 with PSP, having initially been diagnosed with Parkinsons in May 2015. Since August he deteriorated so fast, initially with walking and speech, and then with swallowing. In November he was admitted to hospital with breathing problems. He was there for almost 5 weeks where his swallowing got worse so that he was barely eating. Food started going straight to his lungs which caused pneumonia and he had to be aspirated a number of times. The hospital could do no more and discharged him to a nursing home where he died a week before Christmas. He was a shadow of his former self, unable to speak but still able to understand what was being said. The family take comfort in the fact that he is now at peace and no longer has to fight this horrible disease. We all miss him so much.

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Mimram profile image
Mimram
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16 Replies
Rologirl79 profile image
Rologirl79

So so sorry to hear about your dad this illness is awful. Like you lost my dad to CBD at the end of November.

I am devastated but on the other hand I keep reminding myself of what the illness was doing to him and it gives me comfort to know he is no longer suffering.

Keep strong and keep the faith you will see your dad again but the dad you loved and knew before this dreadful illness took him away xxxxx

Mimram profile image
Mimram in reply toRologirl79

Thank you for your kind words. I am sorry to hear about your Dad but, as you say, they are both no longer suffering.

Rologirl79 profile image
Rologirl79

I would not have my dad back for one second with what he had to face everyday. That don't take away the pain I feel as I miss him dearly but I do have faith I'll see him again but how I remember him before CBD / PSP xxx

lsf7 profile image
lsf7

I know it is so hard to let go but our loved ones are at peace. The only comfort we have is that. Watching them go down whether it's fast or in my brother's case almost nine years. I miss him so bad and he just passed Jan. 16.I didn't post a lot but I found so much help and comfort from this website. A big thank-you to all and my prayers are with you all always.

Kevin_1 profile image
Kevin_1

So sorry to hear that.

I wish you and your folk peace and liberation from the suffering.

Warmly

Kevin

Heady profile image
Heady

Hi Mimram, I am sorry to hear that your father as passed away. May he rest in peace, finally free from this evil disease.

Lots of love

Heady

abirke profile image
abirke

Wow so many leaving us. I pray that your life will continue with joy and good memories and loving the ones around you with all you got....My condolences

AVB

PSPwife profile image
PSPwife

So sorry for your loss. I really hate this awful disease.

mnmbeck profile image
mnmbeck

We lost my father in law today from PSP. What a horrible disease....but, we were blessed to have amazing caregivers and a loving family. Our "new normal" begins tonight. God bless all of you who are struggling day to day with disease.

Tokki profile image
Tokki

Please accept my condolences. Your father is now at rest. May peace be with you and your family.

1941mary profile image
1941mary

So sorry for your loss.... I really feel for you and your family . Saying a prayer for you and your Dad is now at peace thankfully . Take care of yiurself .

Amilazy profile image
Amilazy

Many condolences this winter seems to be taking so many of our dearest and fellow PSP/CBD sufferers. It is a hard time. Take comfort from your family and friends.

Best wishes Tim

5-4-3-2-1 profile image
5-4-3-2-1

So sorry to hear!

maryam profile image
maryam

I wondered if there was a breakout of PSP during the last 10 years as so many of our loved ones passed away this winter. Let us all support each other with words of comfort and support. We know it will get back better and we will remember all the precious memories of our loved ones!!

Take care Mimram!

Maryam

doglington profile image
doglington

So sorry for your great loss. At least he is now free of this dreadful disease.

love from Jean x

daddyt profile image
daddyt

Sorry to hear of your father's loss to this wretched disease. As someone with PSP, I can tell you that he is definitely in a better place. Prayers for you and your family as you move forward.

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