My father is now at peace from PSP

My father was diagnosed in August 2016 with PSP, having initially been diagnosed with Parkinsons in May 2015. Since August he deteriorated so fast, initially with walking and speech, and then with swallowing. In November he was admitted to hospital with breathing problems. He was there for almost 5 weeks where his swallowing got worse so that he was barely eating. Food started going straight to his lungs which caused pneumonia and he had to be aspirated a number of times. The hospital could do no more and discharged him to a nursing home where he died a week before Christmas. He was a shadow of his former self, unable to speak but still able to understand what was being said. The family take comfort in the fact that he is now at peace and no longer has to fight this horrible disease. We all miss him so much.

16 Replies

  • So so sorry to hear about your dad this illness is awful. Like you lost my dad to CBD at the end of November.

    I am devastated but on the other hand I keep reminding myself of what the illness was doing to him and it gives me comfort to know he is no longer suffering.

    Keep strong and keep the faith you will see your dad again but the dad you loved and knew before this dreadful illness took him away xxxxx

  • Thank you for your kind words. I am sorry to hear about your Dad but, as you say, they are both no longer suffering.

  • I would not have my dad back for one second with what he had to face everyday. That don't take away the pain I feel as I miss him dearly but I do have faith I'll see him again but how I remember him before CBD / PSP xxx

  • I know it is so hard to let go but our loved ones are at peace. The only comfort we have is that. Watching them go down whether it's fast or in my brother's case almost nine years. I miss him so bad and he just passed Jan. 16.I didn't post a lot but I found so much help and comfort from this website. A big thank-you to all and my prayers are with you all always.

  • So sorry to hear that.

    I wish you and your folk peace and liberation from the suffering.



  • Hi Mimram, I am sorry to hear that your father as passed away. May he rest in peace, finally free from this evil disease.

    Lots of love


  • Wow so many leaving us. I pray that your life will continue with joy and good memories and loving the ones around you with all you got....My condolences


  • So sorry for your loss. I really hate this awful disease.

  • We lost my father in law today from PSP. What a horrible disease....but, we were blessed to have amazing caregivers and a loving family. Our "new normal" begins tonight. God bless all of you who are struggling day to day with disease.

  • Please accept my condolences. Your father is now at rest. May peace be with you and your family.

  • So sorry for your loss.... I really feel for you and your family . Saying a prayer for you and your Dad is now at peace thankfully . Take care of yiurself .

  • Many condolences this winter seems to be taking so many of our dearest and fellow PSP/CBD sufferers. It is a hard time. Take comfort from your family and friends.

    Best wishes Tim

  • So sorry to hear!

  • I wondered if there was a breakout of PSP during the last 10 years as so many of our loved ones passed away this winter. Let us all support each other with words of comfort and support. We know it will get back better and we will remember all the precious memories of our loved ones!!

    Take care Mimram!


  • So sorry for your great loss. At least he is now free of this dreadful disease.

    love from Jean x

  • Sorry to hear of your father's loss to this wretched disease. As someone with PSP, I can tell you that he is definitely in a better place. Prayers for you and your family as you move forward.

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