I am very new to this site, but I've read most of the stories, and they left me feeling so much in awe for what all of you are going through. I'm Anne and I live In France. And I was diagnosed in 2011 with PD? But during the course of the treatment, my excellent neurologist thought that I had more of à parkinson plus syndrome, or otherwise à PSP plus, because mine is evolving very slowly.
Apart from falling on average 3-4 times a day, mostly when I need to get started, which result In 'cemented' knees , lots of blues and open wounds , and torn muscles in my right shoulder, I have been lucky and I have 't broken anything, a matter of luck and strong bones, I guess!! I fall forwards, sideways and backwards, but i'm so used to this situation now , That it seems to belong to me .
What worries me more is that I have serious problems with my eyes , eecially the muscles, keeping them open isn't always easy, and especially since I have to wear contactlenses because of another condition called keratocone, It is not easy to get them in in the morning,sometimes they disappear behind my eye and stay there, locked as it were , for 2 Days. Sometimes I can Be Heard screaming at this awful PSP,, but most of the Time i just cry my heart out ,until the moment comes when I can say to myself: that's enough selfpitying, it won't get you anywhere , so stop it. And that is then that for the day.
I wonder whether there is anyone out there with same problems?