Hi, my dad's deteriorated particularly rapidly in the last few weeks and in the last few days has gone on a rollercoaster ride suddenly downhill. He can no longer communicate at all (before we would occasionally get a word or two, and he could give an almost imperceptible nod or shake), he writhes in pain if we try to move him in bed to wash him/change the pad he wears for faeces, he can sometimes open his eyes but cannot really move them now, it is almost impossible to get any food/medications down him, and a real struggle to get a few ml of fluid in. He's also developed a horrible alarming sounding watery rattle in his lungs with every breath.
Doctor has prescribed morphine & liquid antibiotic in case pain when he is moved is due to an infection.
His rapid decline makes us suspect he may be in the final short spell of this disease, and we really do hope he doesn't suffer for much longer- the disease has been the most cruel illness imagineable and what he's gone through over the last 18 months or so is utterly, utterly, horrific.
I totally understand how variable the disease is, both in the pattern of symptoms exhibited throughout the months of decline, and in the final days, but does this stage sound familiar to those of you who have cared for, and lost, someone to PSP? If so, it would be good to hear your experiences, to help us try to predict what may happen next, and how long it will take until he is finally at peace.