Next 48 hours: Fred not good. I've just had... - PSP Association

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Next 48 hours

Debbieann profile image
37 Replies

Fred not good. I've just had one of those conversations that I have got a bit familiar with the last 18 months, the 'the next 48 hours are crucial' one, the one that precedes 'there's nothing more we can do'

Love

Debbie xx

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Debbieann profile image
Debbieann
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37 Replies
abirke profile image
abirke

Oh Debbie I am so sorry....I am glad you came here they are just virtual but I have my arms around you darlin....keep us posted with everything thats going on. In fact I am going right now to read what has been going on....

AVB

NannaB profile image
NannaB

❤️ XxxX

abirke profile image
abirke

Ok comment two. I just got back from reading your post before this one....It sounds like he (both of you) has had a rough week with the pneumonia, I am sorry . Get some rest ...do they have comfortable chairs to sleep in, or maybe you could ask them for another bed so you don't have to leave him...Well I am sure you have got that part down since this isn't your first '48 hr' Dance. I am sending you a prayer.....Lord please give Debbie and Fred comfort and strength as they fight the battle of pneumonia these next hours. help them to know You are by their side, and so are we, Lord....amen

AVB

But my God shall supply all your need according to his riches in glory by Christ Jesus Phillipians 4:19

SuzeW profile image
SuzeW

Hugs, strength & peace to you both X

PSPwife profile image
PSPwife

Warm thoughts and prayers sent your way.

pzagy profile image
pzagy

Hi Debbie, I have no words just prayers for you both.

Patriciapmr profile image
Patriciapmr

Debbie my thoughts are with you both and I'm sending you a loving hug....

Lots of love....Pat xx

gypsywoman1947 profile image
gypsywoman1947

Hugs and best wishes , keep strong.xx

jillannf6 profile image
jillannf6 in reply to gypsywoman1947

I agree pat

lol jill

xzzxxxxx

doglington profile image
doglington

Thinking of you, Debbie . big hug.

love, Jean x

Teeker profile image
Teeker

Hi Debbie, I feel your pain and trying hard not to picture my husband reaching that stage. I am sending hugs and lots of love to you both. I am sure that Fred knows how much you love and care for him and that you will always be there however long it may be. We are all in the same boat and join in sending prayers to you asking God to give you the strength you need. Hope you manage to get some rest xxx Teeker

Satt2015 profile image
Satt2015

Aww Debbie I'm so sorry

ill say a lil prayer for your Fred and one for you, that you keep sane!!

Sending you a big fat hug x

Katiebow profile image
Katiebow

Dear Debbie, sending my love to you both. Is F receiving medication or has he opted to refuse treatment? My thoughts are with you and I hope the outcome is what you both want, what more can I say!

Take good carcof yourself, I'm routing for you.

Love and hugs

Kate xxx

Debbieann profile image
Debbieann in reply to Katiebow

He's getting medication, at the stage he's at, we'd not really discussed declining meds, but hadn't expected things to change so dramatically so quickly.

Love Debbie xxxx

Nanny857 profile image
Nanny857

Dear Debbie, just to let you know I am thinking of you and Fred at this difficult time and keeping you in my prayers. Lots of Love, Nanny857xx (Marion )

Wgrape profile image
Wgrape

I'm so sorry for the pain you both are going thru. It's a strange thing to feel your heart ache for someone I don't even know but I feel a connection with because of the struggles you are going thru. Thank you for your posts, I read every one. Please know you are cared for in our hearts. (I'm new to this sight, unfortunaetly) Wanda

So very sorry to hear. Please take care. Will be thinking of you and Fread.Dee

Amilazy profile image
Amilazy

Best wishes and I hope they can help. I am at a similar stage with Margaret they stopped her meds on Wed and started palliative drugs to ease her pain and dry up secretions. She seems so peaceful after the past 4 weeks and seems to be drifting away slowly.

Best wishes to you both. Tim

vlh4444 profile image
vlh4444 in reply to Amilazy

Dear Tim, I'm sorry to hear that Margaret has reached this stage but glad she is peaceful. My thoughts are with you and hope you have support.

Love

Vicki 💞

jillannf6 profile image
jillannf6 in reply to Amilazy

SOO SRRRYt 2 heAR BOUT M/LOL JIILL

CXXXXX

doglington profile image
doglington in reply to Amilazy

Dear Tim, Sorry to hear this. Glad she is peaceful. Its been a long haul for you both.

Love and a comforting hug from Jean xx

pzagy profile image
pzagy in reply to Amilazy

Tim, I am sorry to hear Margaret is in such a bad place. My thoughts and prayers are with you

Marie_14 profile image
Marie_14 in reply to Amilazy

Oh Tim not you and Margaret too? I am so very sorry. This has not been a good couple of months for people on here has it? Wish I could do something but pray for you both and your son too. God bless you. Please let us know how you are? Margaret too of course. I hope she goes peacefully. She will know she is loved that's for sure.

Marie x

Tippyleaf profile image
Tippyleaf in reply to Amilazy

Thinking of you both.

Love and hugs xxx

Richanne profile image
Richanne

This is not the first time you've been here in the last 18 months you say so Fred may well fight his corner this time again.

A lesson to all of us to front up to the big questions while they don't seem too close.

We are presently discussing PEG yes or no and when and been interested to read others experiences. I had not thought of it as life support which begs the question of when to turn it off once in place. Lots to think about.

Jon doesn't want meds for pneumonia if it arises.

I downloaded the advance directive form and guidance leaflet from PSPA and we have been talking it all over for a while.

I do hope for you both a good outcome from your present situation and wish you whatever is best for both of you

All the best

Rosemary

Debbieann profile image
Debbieann in reply to Richanne

Sorry I probably didn't word that very well, it wasn't Fred last time, it was my Dad then my Mum, they give you false hope before they tell you there's nothing more they can do

Debbie

Richanne profile image
Richanne in reply to Debbieann

Sorry I misunderstood. I've not been on this site very long. I guess you get to know everyone eventually and their backgrounds.

I wish you well

Rx

pzagy profile image
pzagy in reply to Debbieann

I wish, just once, they would be straight forward an honest...praying for you both

Duffers profile image
Duffers

Thinking of you both at this time. I cannot help you but offer only my thoughts and prayers. Take care of yourself as well. Ive just spent 10 days, usually 10 hours at a time, with my hubby in hospital and it takes its toll, more than you realise. So do try to get proper rest and nutrition, both of which are difficult with a loved one to watch over, but nevertheless crucial for you the carer. God bless. Marie

vlh4444 profile image
vlh4444

I'm so sorry Debbie to hear that Fred is so unwell. I'm thinking of you both.

Vicki 💕

AmandaF profile image
AmandaF

Thinking of you, sending you best wishes and hope you find strength. Amanda.

Dizz58 profile image
Dizz58

Sending love and thoughts to Debbieann and Amilazy that things turn out peacefully and well for you both and your loved ones. Also Happy New Year to everyone. Sharon x

easterncedar profile image
easterncedar

Just know I am thinking if you, wishing you strength for whatever comes. Love and peace, ec

Julieandrog profile image
Julieandrog

Thinking of you, these chaps are very strong,

Julie x

Debbieann profile image
Debbieann in reply to Julieandrog

he's critical but no change, it's heartbreaking. I can't believe we've gone from a somewhere near normal life, to he probably won't survive in the space of a few days.

Thank you julie for asking

Love Debbie xx

Marie_14 profile image
Marie_14

Dear Debbie, I am so sorry to hear your news. Praying for you both. Here I am crying again just when I'd stopped!

Too many good people being put through hell with this condition. Never going to stop telling people about it and what it does to everyone.

Wish I could give you a big hug Debbie. Afraid this will have to do for now. ((((Hug))))

God bless you both and much love to you too. Please keep us in touch and let us know how you and Fred are?

Marie x

Julieandrog profile image
Julieandrog

Hi Deb

Thinking about you things better?

Julie xx

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