I am new to this on-line support community. My Sister has CBD with strong PSP traits. I am caring for her in my home along with my 28 year old son who has cerebral palsy. My husband is a saint and an angel to say the least. My son helps with his aunt by playing her favorite music when she feels sad... this really helps! Over the last four years my sister has been mildly effected, but I feel we are entering a new phase. Until recently she has been so cooperative and happy. But now she is sleeping a lot and when I come to get her out of bed - even if it is at the crack of noon - she is mad at me. She is starting to eat less and getting her to drink is getting difficult. She takes seizure medication and sometimes spits it out. She speaks in short phrases and she understands everything I say to her at this point. She does not need a wheelchair and can follow instructions - although I have to 'direct' her several times before she actually responds.
I know we have several more phases in this disease process... and It has been relatively easy up to this point. I do my very best to take care of her... but it is hard when she gets mad at me. I don't really have a question for the group - I guess I don't have enough experience with CBD/PSP to even ask a question yet.
I wanted to join because reading some of your posts has given me some insight as to where my sister is going. Any advice would be appreciated.