Peristeen???: Hi, has anyone heard of this... - PSP Association

PSP Association

9,665 members11,572 posts

Peristeen???

Heady profile image
47 Replies

Hi, has anyone heard of this or used one?

It is a rectal catether, pipe going up inside, water is pumped in and washes out the bowel.

S's bowel nurse, has said this is the next thing to try, if regular enemas don't work. Apparently, you can do it yourself. It helps in keeping you regular, without any mishaps, as you are always empty. It's used regularly with people with spinal injuries, MS and Spinda bifida, according to the literature.

Obviously it's muggins here, that will have to do it, which I can't say I am thrilled about, but if it stops incontenance and therefore, keeps him at home that tiny bit longer, how can I say no...........

Lots of love

Heady

Written by
Heady profile image
Heady
To view profiles and participate in discussions please or .
Read more about...
47 Replies
peterjones profile image
peterjones

HI HEADY I THINK I

HI' HEADY MATE IF YOU DONT MIND I WILL STICK WITH THE VEST MATE '' POOR S '' TO SUFFER THE PANGS AND ARROWES OF OUR MISFORTUNE OUCH YOU GO FIRST S I DONT MIND MATE IT LOOKS LIKE THOU HAST GOT AN EARLY CRISSY PRESENT MATE PETER JONES Q.L.D.AUSTRALIA PSP BLOKE AND A BIT SQEEMISH

Heady profile image
Heady in reply topeterjones

Not sure which of us will class it as an early Xmas pressy, but anything that stops me having to change a nappy, as got to be worth a try.

Lots of love

Heady

Georgepa profile image
Georgepa

Oh Heady what new joys you have opened up ! Something else to look forward to as if unblocking catheters wasn't enough ( I am now an expert by the way ). But oh boy a new skill level to embrace - soon we will be getting our little blue uniforms - any chance we might get one of those little starched caps to go with it ?

love Georgepa

easterncedar profile image
easterncedar in reply toGeorgepa

Oooh! I want one of those caps!

doglington profile image
doglington in reply toGeorgepa

There you go again , George ! You're keen to dress up ?

love, Jean x

Georgepa profile image
Georgepa in reply todoglington

Come on Jean you know you want to! Adds a bit of spice to life .

Love Georgepa alias Nurse Georgina (Thursdays only)

doglington profile image
doglington in reply toGeorgepa

You're so right. Black stockings are involved !!!

Georgepa profile image
Georgepa in reply todoglington

Oooooooh Jean no ! not the black stockings please not the black stockings .

( Do you think we might have strayed off the original subject a bit , whatever is Heady going to think ?)

Love Georgepa

doglington profile image
doglington in reply toGeorgepa

Yes !! I think I need to lie down !

I think Heady might join in. More "Carry on Matron" than E.R.

Love, Jean x

Heady profile image
Heady in reply todoglington

Definitely Jean! This house sometimes feels like something straight from the film.

Lots of love

Heady

doglington profile image
doglington in reply toHeady

Black comedy !

Love, Jean x

Heady profile image
Heady in reply toGeorgepa

Heady thinks you two need to get a life. Oops, so do i!!!!

Lots of love

Heady

Georgepa profile image
Georgepa in reply toHeady

Join the club Heady its blue uniforms little starched hats and black stockings all round - then out on the, town .Do you mind if I wear flaties never mastered heels :-)

Heady profile image
Heady in reply toGeorgepa

Now you are talking, where are you taking us????

Lots of love

Heady

Georgepa profile image
Georgepa in reply toHeady

"Dreamland "

abirke profile image
abirke

well the boys (georgepa and Peter Jones) might be a bit squeemish, but compared to backing up and either exploding at the most inconvenient times (that would be anytime) or having to do an enema inwhich the bowels movement moves all over the enema giver...I d say this other method may have its benefits. As one who is having success with the urine catheter, again, this new fangled thing may be a good thing....and once applied the rectum will probably get used to the , i am sure very gentle tube, being applied.....With PSP, never say no...or at least "lets give it a try..."

May the mishaps be minimal

AVB

Georgepa profile image
Georgepa in reply toabirke

Squeemish - I don't think so - 8 bowel movements last Saturday and only one of them made the commode !!

abirke profile image
abirke in reply toGeorgepa

Oh I beg your pardon sir....I guess I'm a bit ignorant...perhaps spoiled since I have yet to experience those days...Maybe you ought to use this particular catheter....I mean with that much constant bowel in her rectum a tube going up it would probably not be noticeable.....c'mon Georgepa...whats another tube!

May your next successful movement be Brahms 4th symphony, mvmt 3 it's got bold success, and a bit of wiley-ness ....

AVB

peterjones profile image
peterjones in reply toabirke

is that like brahms luliby mrs avb wot about the William Tell Overture that should shake things around a bit mate sorry heady got carried ,,mmmmmmmmmm Away AWAY AWAY y

doglington profile image
doglington in reply topeterjones

I think the 1812. Cannons and fireworks !

peterjones profile image
peterjones in reply todoglington

might be a bit harsh mate

powerful stuff that 1812 overture blast off

peter jones q.l.d. australia

psp person see yer mate

doglington profile image
doglington in reply topeterjones

Yeah, think you're right.

I'll calm down a bit !

Jean x

abirke profile image
abirke in reply topeterjones

Beethovens 5th!! I was just looking for a good Movement", one that didnt' require Depends hahahahhha

AVB

Heady profile image
Heady in reply toGeorgepa

Perhaps you ought to have a little chat with the B & B team. Might save all this c##p, if you will excuse the pun!

Lots of love

Heady,

Ps, please send pickies when you get your new uniform!!!

abirke profile image
abirke in reply toHeady

You know our American nurses wear a very casual uniform with no hat anymore.....But I am sure some of our caregivers would be every bit striking in their blue uniforms!

Satt2015 profile image
Satt2015 in reply toGeorgepa

Oh god Georgepa how do you cope?? X

Cuttercat profile image
Cuttercat in reply toabirke

Charles woke me up today saying he soiled himself. He did not. He is so afraid of either and what will happen. As a nurse he is so clean and so proud.

I told him to forget it. We will handle it. Enough said, ugh, I've seen it and smelled it and touched it.....................

Cuttercat

Debbieann profile image
Debbieann

Sounds like colonic irrigation to me, didn't Princess Diana make that fashionable!!

Good luck with it, but if it helps I suppose you've got to try it! Says me who retches at a soggy tena pad!! And have to shut my eyes and hope for the best to clear up poo

Lots of love

Debbie xx

Heady profile image
Heady in reply toDebbieann

That's what I thought, but the word was not mentioned. Meant to be really good and you feel great afterwards, if it is the same. Perhaps it's not such a dreadful thought after all.

Lots of love

Heady

peterjones profile image
peterjones in reply toHeady

hi heady/ close your eyes and think of England that's what they say isn't it matey peter jones q.l..d. australia

abirke profile image
abirke in reply toDebbieann

Can you do that on a daily basis?

Yvonneandgeorge profile image
Yvonneandgeorge

Oh heady district matron came in today, she recommended it for George, we have a hospital appointment for Saturday about all this, so fed up Heady George opened his catheter all over the chair, over the floor and over me, just want to leave here so fed up xxxxcc

Heady profile image
Heady in reply toYvonneandgeorge

Hi Yvonne, it's so frustrating isn't it. We had a nightmare day with S yesterday, enema wouldn't work, DN then came back to give suppositories, which finally did. Spent about 5 hours in the bathroom. After all the hassle of that, his bag then got detached. Can you not cover the tap with something. Or get a different type of bag. S came home from respite, the other week, with a new type of tap, you had to push it one way or the other. Very fiddly, I struggled to work out to empty the bag at first, a Carer had to show me. Also his bag is attached to his leg by a sleeve bag, it does stop him easily being able to fiddle.

Do let me know how you get on, when you go to the hospital on Saturday.

Lots of love

Heady

Yvonneandgeorge profile image
Yvonneandgeorge in reply toHeady

Heady will keep you updated with the hospital, DN said there are some clipped to go on them, she is going to order some for us, he opened his leg bag again today, all over the floor, over the sofa and he got me, such a hard bloody day again!!!!!

doglington profile image
doglington in reply toYvonneandgeorge

Poor you. I haven't had that yet but I think I'd just cry. Well, I would if there was anyone to hear !!

Big hug again, Love Jean x

abirke profile image
abirke in reply toYvonneandgeorge

Well B may or may not have his first UTI....and yes hes opened his bag which then leaked all night long.....It's amazing I have any more finish on the floor!

AVB

Satt2015 profile image
Satt2015

Ooh no heady,never heard of this but am very interested to hear more.....x

Heady profile image
Heady in reply toSatt2015

I'll let you know, if we have to go down that road.

Lots of love

Heady

Georgepa profile image
Georgepa

Sleeve bags - been using them for weeks -told you I was an expert ! Now you want to get into opti flow and flushing that is really exciting especially the suction bit .Just had a session before supper (quite a small supper after that have to admit)!!

Spiralsparkle profile image
Spiralsparkle

I have heard of this before for constipation in other conditions and makes sense it would be useful for our sufferers. Not pleasant for the one who has to operate it I guess but like you say if done regularly shouldn't be as awful as mega explosions happening after enemas etc.

Marie_14 profile image
Marie_14

Heady

Just looked this up online. I had never heard of it before. Although my hubby is in a Care Home he is now doubly incontinent too. I don't know what they do but will ask now I know there is something to control this. Can't see them wanting to do it in a Care Home however?

He has 4 different hospital appointments over the next few weeks so I am worried sick about how we will cope if he soils himself. Worried about how I can get a stretcher into all the clinic's too. I know 3 of them don't usually have patients on stretchers. Not sure about the other as he has never been there before!

Good luck to you with this new device. I hope it all works for you.

Marie x

Heady profile image
Heady in reply toMarie_14

Either phone the hospital or the doctors. Tell them the problem about the stretcher and let them sort it. As for the other problem, do like you did when the kids were small, ignore it!!!

Lots of love

Heady

gypsywoman1947 profile image
gypsywoman1947

Oh dear Lord ...........this bloody illness......

Katiebow profile image
Katiebow

Well Heady I hope the new devise is successful and helps you to cope with this sh###y situation, so to speak. Must admit I don't relish the time when I have to deal with bowel stuff, to look forward to! Ben has had a few mishaps but always at home, not sure how I will deal with it when we are out and about but amazing what we carers are capable of.

Love Kate xxx

doglington profile image
doglington

The things I am learning with this disease.

It certainly sounds like something rich people pay a lot for !!

Wait to hear more, Heady.

Love, Jean x

Dizz58 profile image
Dizz58

Just googled it, there's a strangely amusing cartoon lady showing you how to do it. The thing is cartoon ladies have cartoon poos which I'd imagine you clean up with an eraser. No disinfectant necessary, hay Heady ?

Heady profile image
Heady in reply toDizz58

We have been giving a DVD to watch, which is probably the same as you have seen on Google. Have yet to watch it, somehow Sky News is winning.

Lots of love

Heady

Not what you're looking for?

You may also like...

Sinemet

Hello. We are aware that Sinemet is used for regular Parkinsons but is used for PSP patients and...
JB569 profile image

"When I'm gone"

As regular bloggers will know I'm often awake "in the wee small hours" and I was lying in bed the...
Kathy profile image

Carers dilemma responses

Thanks guys and gals for all your comprehensive responses , they really do help. There are so many...
Georgepa profile image

Dad in late stage PSP

Hi Sorry for the long message but I would really appreciate some perspective... My father is in...
sammy90210 profile image

What are the odds?

I've been dealing with late stage PSP with my husband who has had the misfortune to have not one...
Jkhakh2 profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.