Out of curiosity I would like to do a check of the meds that your doc is giving for PSP My Aunt Bev Takes Carbidopa-Levodopa 25-250 tab 5 times a day and Pramipexole 3 tab 1 1 mg also 5 times a day and that is it there is nothing wrong with her brain, she has to remind me of things half the time she can no longer walk but still trys to get out of bed , she still wants to eat even though she has the peg tube which I still let her have food try to make it soft though she did eat french toast this morning shes not ready to die still has fight in her told hospice to fuck off and is 100% smart ass and some times sees a simise cat running around which figures is her imaginary cat because I told her once in a while she sees things or people that are not there Has trouble sometimes taking a poop which I use a supositry , has had PSP going on 14 years now. I see posts about the end , and about different meds that they are trying and wonder are the docs even working togather anywhere or are they just still guessing on what to give for PSP. PSP will not kill you but choking and phanomia and some times UTI if they get bad enough, What will kill you or your loved one is HOSPICE, and not feeding them or giving water. I dont know Im just babblying on with my thoughts they are all scrabbled So this might not make any since.
Lots of Hugs to everyone
Aunt Bev and Kryste