I am cross, no more than cross , I am furious ,incandescent with rage , boiling mad spitting feathers - today I contacted the CCG with regard to our assessment - it allegedly went before the panel over 4weeks ago and we have heard nothing . I e-mailed the nurse who did the assessment last week and she sent an urgent e-mail to the CCG requesting information and got no response so I phoned today . The first person I spoke to asked for a reference number for the assessment and I said we hadn't got one as they have not sent us any communication since we had the assessment done at the start of September . Anyway she looked up on the computer and said she would put me through to the person dealing with V's case . She came back to me and said that this person was on the phone but would call me back . Did she - hell no she didn't . So after lunch I telephoned again and asked to be put through to one Angela Rickard who is titled Officer to the Panel . This is the panel which is supposed to say yes or no . She informed me she didn't get involved in assessments . That's the point my patience ran out and I told her what a half baked total waste of space their organisation was . That they didn't keep people informed , didn't stick to their own guidelines with regard to time schedules , didn't have the courtesy to return phone calls that the whole system was totally ludicrous because by the time anyone came to a decision then it would be already six months out of date which was about as useful as a slap in the face with a wet kipper . She then said they were very busy - cue for hitting the roof - what did she think I was , my wife is half blind doubly incontinent , has dementia can't swallow without choking and has to be fed every meal with a teaspoon and has to be hoisted round the room on a sling from the ceiling - if she thought she was busy what did she think I was , I pointed out that I had been caring for my wife for nearly three years 24/7 365 days a year with no real break , would she care to swap ? She then said she believed V's assessment was with the qualitative control nurse and she would get her to phone me . NO I ,said give me her name and I will phone her > No ,I was told she couldn't do that but assured me she would get her to phone . I then informed her that I have already written to Dr Sarah Wolleston the MP for Totnes who is also Chair of the Common's Select Committee on health `asking her and her committee to investigate the nonsense that is CHC funding. And that if I didn't get a call back I would be getting my MP involved and also firing off a letter to Jeremy Hunt the minister for health quoting chapter and verse about their incompetence , procrastination and what appears to be a deliberate policy to discourage people claiming CHC funding . Also that it would appear to be the case that if someone is in hospital then things can happen very fast as that stops bed blocking but woe betide you if you are just about coping at home then you are bottom of the list . When I phoned off in a strop ,I thought well that's not like me but perhaps it will give them the proverbial kick up the backside . Did it ? No it didn't - no return phone call - zilch . They are just unbelievable . By the way I have nearly calmed down now but will develop a full frontal attack tomorrow whilst V is at the hospice day centre .
Georgepa the Intrepid