Hello everyone. I don't post often but read daily posts but was wondering how people find the illness progressing in as far as their loved one beginning to slaver? Mam has just noticed this with dad I have not as yet. Is this part of the progression in relation to being unable to swallow???
Goodness I find this illness so heart breaking tears flowing so better go sort myself fir work. Love and prayers to you all.
Hyperproduction of saliva is definitely a common symptom of psp, and problems in swallowing make it worse. There are lots of avenues to pursue in dealing with this: Botox, hyoscine, amitriptyline, speech therapy, for a few. You might do a search here and read what has been posted already. We have found the speech therapist very helpful, although with every symptom we are all fighting a rear guard action. The disease attacks on so many fronts and there is no winning, just delaying defeat, keeping a decent quality of life, for as long as we can.
my wife who has cbd -has problems with swallowing - thoughts of gp was too much saliva - prescribed a hyoscine patch - put patch on 7pm - when awoke around 5.30 am the following morning her tongue was very swollen and found it difficult to drink. took patch off - called doctor who agreed that there was an allergic reaction. thought it would be worth a mention for something to watch out for if using this patch
I've been very reluctant to try it because of the risk of hallucinations, too.
Well said ec. AC1, B has this problem combined with lack of swallowing so we got him physical therapy who gave us swallowing exercises. But the thing that has worked best for B is the suction machine loud as it might be! Alos make him "spitunes" for places like his chair outdoors and his bedside.
When he is out in public, make sure he has a hankie or a towel to relieve some of the saliva.
good luck to you and your family as you face this disease.
AVB